WHATEVER IT TAKES KEEP GOING CIDP & RECOVERY? There is a famous expression in English: ' When the going gets tough, the tough get going' –meaning when the situation becomes difficult, the strong will work harder to meet the challenge. Sometimes, when we are in a tough situation, an inspirational quote or saying can help us calm down and focus on what we need to do. Quote On Life "Whether you think you can or you think you can't, you're right". Henry Ford (1863-1947) Ford's quote could be applied to life in general. Have a positive or a negative outlook. It's up to you. 'It's not rare if it happens to you'. Traveldriven quote WHAT IS CHRONIC INFLAMMATORY DEMYELINATING POLYNEUROPATHY UNDERSTANDING CHRONIC INFLAMMATORY DEMYELINATING POLNEUROPATHY SIGNS OF AND EXPLANATION OF CHRONIC INFLAMMATORY DEMYELINATING POLYNEUROPATHY OUR PAINTBALL GROUP SNIPERS DEN MELBOURNE I second from left as a lefthanded paintball shooter THE OPPONENT'S CHINESE SOLDIERS? First and only paintball experience. Great day out by all on a hot Melbourne day. We received many hits and returned many back. Eight weeks before CIDP diagnosis. CONNIE & WAYNE ON HOLIDAY HAPPIER TIMES AFTER HOSPITAL DISCHARGE & HOME WITH CIDP My CIDP recovery journey is written below. Living with a rare serious condition from before the onset of the COVID-19 pandemic. Hopefully the worst of CIDP is now behind. In 2019, after hospitalisation for CIDP, a personal decision was made to work on and expand the Traveldriven website over the long term. This choice was primarily driven by the need to stay occupied during an unknown period of impaired physical immobility. The aim was to engage both mind and body. In a positive way. A realisation was that if any significant recovery was to occur it may take years. After CIDP hospitalisation hand dexterity along with normal touch sensation were some of the first physical functions to return. Fortunately, I had basic touch-typing skills. Initially this helped to gradually regain hand and finger coordination whilst also creating an online website. One step at a time through trial and error with no prior website design experience. The hope was to build something useful and relevant to myself and others. The goal was to give purpose to the many days and months of CIDP recovery, (if it happened) that lay ahead. Try to maintain a positive outlook with keeping busy. As imagined, a hard thing to do when physically very limited for the foreseeable future. At times, website building was the only daily focus. Below is primarily published with a view to help other's recently GBS/CIDP diagnosed. An in-depth dive into CIDP for such people. The story written by me as a self-improvement reference. How CIDP changed life in general and for those interested in rare conditions from a non-medical perspective. A factual account. No embellishment needed. As those with CIDP would no doubt agree with. There are virtually no online non-medical long term personal points-of-view to be found about CIDP. The following is a personal perspective based on first-hand experience with CIDP, detailing at first the weekly progression. It primarily highlights positive developments over the ensuing months and years. 9,713 words 35 minutes read Chronic Inflammatory Demyelinating Polyneuropathy An immune system disorder. The myelin sheath of peripheral nerves is damaged. In my opinion, CIDP brings much uncertainty. Saintly patience is required for nerve self-repair. If any repair does occur, it often will take years. CIDP-damaged nerves exhibit a variety of unique symptoms. Following is one individual's perspective. Hi my name is Wayne. I live in a small regional city. Located in Victoria, Australia. It is January of 2019 no health issues and fifty-nine years of age. I was working as a food industry employee on the factory floor involving physical work and long periods of standing. Although physically demanding work, I had no problem carrying out work duties. I thought I should get a doctor's check-up. Something didn't feel right. Affecting Daily Life  A General Practitioner appointment was booked. I explained to the GP I was experiencing numb toes and tingle sensations.  The gist of the consultation was to come back if things did not improve in three or four weeks. Shortly thereafter, a weekend day drive to a coastal tourist town near to the famous Great Ocean Road in Victoria left me wondering how safe my driving was. I own two sedans. One manual and one automatic. Driving my automatic transmission car in the busy main street I stopped in traffic. A car behind and a car in front. I depressed my right foot on the brake unaware the side of my foot was still on the accelerator pedal. Smelling tyre smoke and hearing the car's engine revving I quickly turned the ignition off.  I realised I did not have enough feeling in my feet to feel the pedals. An accident avoided and a cautious drive home. Acupuncture?   It was suggested acupuncture may be beneficial. Unsure of driving ability. I travelled almost three hours by train to the Melbourne inner suburb of Footscray. With a slight hobbling gait, I walked from the train station to the appointment no more than two short city streets away. Sceptically, I agreed on a two-hour consultation. The Chinese acupuncturist, an older man with a tenuous grasp of the English language at best, inserted needles in both my feet and upon withdrawal all were bent at right angles. The acupuncturist commented the normal needle curvature was severely bent out of shape on all needles. Evidence of extremely taunt tendons. He recommended daily use of a foot spa, the spa water diluted with straight whisky and a further two weekly sessions.  Feet submerged in bubbling whisky and water. An incredulous recommendation in my opinion.  I returned to my home unconvinced acupuncture made any difference. I felt no different after the one acupuncture session. I declined the two further expensive sessions. I did buy a bottle of Jim Beam discounted on sale. I already owned an unused foot spa. I used it once as recommended. I drank the bulk of the whisky over several dinners. An entertaining story. In an Immobile State & Past Trauma I was struggling to lift my feet for no apparent reason. All my fingers tingled and all my toes felt numb. Accessing my automatic geared car parked in my driveway, I stumbled completely backwards and fell on my lawn. Fortunately, I didn't hurt myself. Not a misstep. But all leg strength momentarily lost. Thereafter on another occasion I went out for coffee drinks at a local café with a few family members. We were sitting at an inside table. I raised my beverage in one hand and gripped around the mug’s handle ready to drink. Instead, l spilled the full mug of hot cappuccino coffee over my shirt and table and there was spillage onto the floor. I could see looks of astonishment in those around me. I felt the same. Suddenly experiencing very weak hand grip coordination for no reason. A concerning development I had no answer for. Within two weeks I returned to my local GP for a second appointment. The doctor referred me to a Melbourne neurologist a few hours' drive away. The first appointment was for ten days' time in Ballarat. This is a large regional city in Victoria. Apparently a visiting Melbourne neurologist attends a consulting room once per month. I spent the time waiting housebound and unable to work. It  took six attempts to park my automatic car in the garage behind the roller door. Now unable to drive safely. In  these days following my second GP visit both my leg strength and self-balance was deteriorating. I had lost feeling in both feet and my gait was unstable and weakening. At times I had to steady my walking with hands placed on walls inside my house. No public transport is available where I live. I live alone as my wife of twenty-three years passed away with breast cancer two years before. Connie, my wife, would have been whole heartily supportive one hundred percent, as I would of her. Waiting for Medical Help Now, nearly two years later I needed to see a specialist. What is it? At least I knew I didn't have cancer. I have no home support. Several days after my second GP appointment I could barely walk around inside my home. I telephoned the Melbourne neurologist's reception twice and tried to bring the appointment date forward. I offered to get myself to the Melbourne clinic as my condition was deteriorating. My walking is becoming weaker. Reception replied the original appointment was the earliest date and all earlier times were fully booked. I asked if I could speak to the neurologist. 'No, he's with a patient'. Ok, so I waited at home with a stoic attitude thinking everything will be ok after a week or two of rest and time off work. I didn't think a further GP appointment would be helpful anymore. I thought I would get through the weekend, then go to my specialist neurology appointment scheduled by the end of the week. My respiratory condition felt normal during this time. A further five days passed housebound and I was then driven to my neurologist appointment. I attended a medical consulting clinic used by visiting Melbourne specialists. Located in Ballarat. Well over an hour's drive away. Upon seeing myself struggling to walk and assessing absent nerve reflexes the neurologist, who was a prominent specialist in his field, immediately admitted me to St Vincent's Hospital Melbourne. He telephoned the hospital on the spot. Luckily, I carried a small overnight case. I was allowed no time to return home to pack a bag. I was told by the neurologist no medical transportation was available to convey me to hospital, but I must go directly and immediately to hospital. Upon hearing this my driver, a family member, kindly agreed to drive me without delay to the Melbourne hospital. A further one and a half hours' drive and one hundred and twenty kilometres away. I distinctly remember the neurologist telling me I think you have GBS or CIDP. Let's hope not CIDP. Of course, I was clueless of these remarks. I, like many, not realising the serious health implications of these unheard of conditions. In both Guillain-Barré Syndrome and Chronic Inflammatory Demyelinating Polyneuropathy one's own healthy immune system turns rogue and attacks the peripheral nerves. Both are classified as autoimmune disorders. GBS is seen as an acute disorder occurring once only and is of a relatively short duration. CIDP is the chronic counterpart of GBS. Both can strike anyone, male or female and at any age. Guillain-Barré Syndrome and Chronic Inflammatory Demyelinating Polyneuropathy both have the same symptoms on presentation to a neurologist. Also, identical treatment. Unknown Cause CIDP origins are idiopathic, (unknown). Although, one United States research paper available online documented a small cluster of GBS/CIDP cases among workers in a piggery attributed to Campylobacter Jejuni  sometimes found in slaughtered pig, sheep or chicken.  I worked in the food industry for years in an abattoir with daily exposure to dried blood from thousands of freshly slaughtered sheep. The provided cotton hood head/face and body protective clothing ineffective as a 100% barrier against dried blood contact. Some factory floor assigned tasks were working with hand held air guns and filling large stainless steel bins with hard poly-plastic meat hooks. Hooks were manually pulled off by hand one at a time. Off of the overhead automated chain line terminus. About every eight seconds or so. Hooks were tossed into wheeled bins containing hundreds of hooks before they were full.  A few workers joked these repetitive jobs were employment as a Blower and a Hooker. A colourful amusing work description. All employees entering and exiting the processing plant had a mandatory requirement to wash and clean the underside of boots or risk dismissal by management. High pressure hand held water guns were held above a trough. About knee high.  My last working day l found it virtually impossible lifting my feet to the troughs. Once outside and entering another building it was a tough task walking up and down a stairway to the second floor locker level to change workwear. A serious early escalation in symptoms. Medical publications such as National Library of Medicine, Journal of Neuroimmunology etc, cite up to 40% of those diagnosed with GBS/CIDP showed a viral infection with Campylobacter in the few weeks prior to symptoms appearing as the result of the onset of nerve demyelination. Nerve demyelination symptoms such as numbness, tingling and weakness in all limbs. No Campylobacter was found in the many blood tests I had in the hospital. I don't recall having common symptoms of Campylobacter. The short answer is I never had a Campylobacter infection. Although I can't state this with one hundred percent certainty.  Medical literature cites livestock workers with a positive viral infection to Campylobacter Jejuni have a one in a one thousand chance of acquiring GBS or CIDP. For the general population there is a one in a one hundred thousand chance of acquiring GBS/CIDP with no exposure to livestock. Hospitalisation  ♿ On the drive to the hospital, I realised this is to be my first hospital admission as a patient in over forty years. Thinking probably, it will be a few weeks until I return home and back to work. Looking back with hindsight it’s fortunate to be naive and not know what might lay ahead.  I began intravenous immunoglobulin (IVIG) infusion of Privigen that night, Friday. A mixture of purified antibodies and donated blood plasma. Each infusion takes about three to four hours. Administered through a catheter needle inserted into a vein in the arm to overwhelm the immune system's own antibodies attacking the nerves. In the following days I was moved to another ward. The third consecutive day of IVIG had a late finish of 3 am. End of the loading dose of IVIG treatment. Symptoms, Not Good Here I was. A patient in a multi bed public ward. I could do little more than observe the surrounding hospital routines. Doctors, nurses, patients and visitors. With sometimes a dose of chaos mixed in. An adjacent patient was visited by a female family member. During one of her visits she collapsed creating an emergency situation. Nursing staff immediately called for doctors and issued a loud PA emergency announcement. Doctors in their white coats came out of nowhere huddling around the collapsed visitor now unresponsive. The blonde woman was laid down on the hospital bed previously occupied by the brother she was there to visit. Rather frail in appearance. He looked no more than forty years of age. He is sitting by the bedside as they both had been out of the building to smoke a cigarette and returned. The cause of why she collapsed was extremely low blood sugar levels. A diabetic emergency. The woman was stabilised after a good amount of time passed and admitted to hospital on another floor for overnight observation. An odd pair, her brother was always unwilling to engage in conversation with those around and he presented a general defensive posture. In the meantime, all of this commotion delayed the commencement of my IVIG infusion by several hours. As mentioned to a 3 am finish. Within days I had a lumbar puncture (spinal tap) showing mild elevated protein levels. An orderly pushed me in a wheelchair down to the hospital's first floor where a nerve conduction study  was undertaken in a small room. Lit with defused lighting and sunlight filtering through partially drawn blinds. The muted sound of city traffic passing outside. Two electrodes were placed on each limb to measure nerve responses. I was clueless of the process and didn't ask questions. Staying silent. Graph printouts were examined. The two medical technicians involved in the study discussed findings between themselves. I gathered that the nerve conduction study showed total and partial blockage on major leg nerves. Symmetrical left and right of the body. I was returned via wheelchair to my ward. During the next few days multiple blood tests and other tests were carried out. One doctor told me a blood sample was sent to far off Western Australia for analysis in a laboratory. Apparently testing for this one particular pathogen could only be undertaken in Perth. Why? I don't know! The result returned negative. Good. All tests showed no evidence of recent viral or bacterial infections. Nothing. I hadn’t been out of the country for years to catch some exotic disease. No illness, no blood clot, not even a dose of the flu or a cold. How can you become so disabled and not know the cause? This is a concerning thought to anyone. Greatly mystifying to me! Disabled and Bleak Outlook All the staff treated me well. I could not walk and was dependent on a wheelchair. A walking frame provided some standing support for very limited room use. I was experiencing a complete loss of self-balance. Numb from backside and legs down. No leg reflexes. Significant paralysis of all four limbs. Acute abdominal tightness caused moderate breathing constriction. Tested twice daily for breathing capacity in anticipation I needed artificial breathing assistance via a ventilator. I was administered daily stomach injections to prevent blood clots because of immobility. I have always been a non-smoker. I took solace in this. Additional complications I could do without. I could hold light weight items such as a spoon, fork and knife but all extremely hard to use. I was unable to open served food or drink lids. Could not write or use a mobile (cell) phone, use buttons and zippers, tie laces or hold a small cup of coffee in one hand.  One doctor asked me to count how many of his fingers were held up in front of my face. I counted correctly. Previously there were initially a few instances where vision was blurry but then vision quickly came into focus again. I kept this alarming thought of possible deteriorating vision to myself. My eyesight never gave me problems in the past. Always having quite good vision. There was mild shortness of breath due to tightness felt around the torso. What is happening? How bad can things get? I pondered, will I lose the ability to breathe freely? Torso tightness later fluctuated between severe and moderate and was felt daily over the initial few years. I was relieved no airway ventilation was ever required.  Facial movements were unaffected. No suggestion of Bell’s Palsy or anything. A condition I have heard of that affects facial nerves.  No further Deterioration Doctors asked if I could wiggle my toes up and down. To everyone's surprise. I was able to. I was asked if I was able to stand beside my hospital bed. Assisted by staff and total reliance upon a walker with great effort I managed to stand. A doctor requested me to push against his upper body with an open hand and with as much force as I could muster. Are you sure? I asked. Yes, to test upper body arm strength. Alright then, surrounded by a few doctors I pushed my outstretched hand against him and nearly pinned him to the wall a couple of steps back. There was a somewhat perplexed look returned. A bit of an unexpected result indicating that I still retained some strength. Although I found it impossible to lift my feet more than an inch off of the floor due to leg weakness and a lack of balance.  My condition did not deteriorate any further after the first few days while in hospital. By week's end doctors assessed my condition as somewhat stable. With mutual agreement my public hospital bed was moved to other wards five times during my lengthy hospitalisation. Even down a floor to another ward. All wards were at near to full capacity. I was stable and under supervision. I was later told the first course of IVIG probably stalled the progression of CIDP. I understood progression meant reliance on a ventilator and total immobility before likely incremental improvement. Specialist Consensus and First Symptom? I agreed to be wheeled in my wheelchair to the once every Friday specialist meeting. The rock star treatment! Lol. On an overhead projector my condition and possible diagnosis was discussed in front of twenty or so experts including the department head Professor of Neurology. Doctors posed questions with pen and notebook in hand. I answered what I knew. At the conclusion of this gathering of medical specialists  I was returning by wheelchair to the wards via a lift when quite unexpectedly another person in the lift recognised me and said, Hello how are you? I immediately knew it was the neurologist I saw in Ballarat who admitted me to this very hospital. I said considering everything that's happened recently I was as good as can be expected. I also said see you later up in the hospital ward. He bid me farewell and left the lift. This was the last sight of him until a return appointment from home to the Ballarat medical clinic some months later. Unbeknown to me apparently, he was only available for private patients in the hospital environment. No public patient visitations were to be expected. Was this normal practice in the Australian hospital system? I didn’t know if that was the case. IVIG infusions are free to Australian residents so long as the criteria is met and signed off by a neurologist once every twelve months for continuing treatment. Specialists later diagnosed CIDP and not GBS as my symptoms were at least eight weeks. The onset of GBS from perfectly healthy to bedridden is usually within days or is almost always under a fortnight. CIDP onset is always much longer being eight weeks at the earliest or much greater in time. A little more than two months before diagnosis I paid for a family paintball day in Melbourne. My legs gave way underneath me on short sprints. No pain. Just momentarily weak legs. I thought this odd and amusing at the time. I attributed this to overworking myself. Even then during the long drive from Melbourne to home l felt a small amount of leg weakness. In hindsight, the first symptom of CIDP that I can recall. Normally I don't jog. St Vincent's Hospital Melbourne had no other patients with GBS or CIDP. Both are rare conditions. Apparently, there is a one in one hundred thousand chance of a diagnosis of CIDP. Long Term Hospitalisation Concerns The isolation of a big city hospital away from familiar faces is very confronting. Initially on arrival I was placed in the intensive care neurology unit with a row of many seriously ill people. Many patients post operative and bedridden. Their heads covered in long tracks of medical suturing (stitching). A very sobering sight. Medical equipment monitoring everybody. Soon thereafter thankfully I was moved to the ward where as previously described, the woman collapsing with a Hipo was visiting her brother.  On one of my five moves to different wards an adjacent patient had suffered a mild stroke and was up and about unassisted walking, talking and using all four limbs very well within a few days. A likeable person with a glass half full attitude. Acknowledging he was a lucky man. Not so for myself, diagnosed with a crippling condition. Prognosis unknown. During my hospital stay my only regular visitor was a weekly visit from a volunteer inter-church counsellor. These visits were really helpful and appreciated. Otherwise, I had no one to confide in. No visitors. Just a very brief single visit from a family member. After a month passed, another family member paid me a full day visit.  I was pushed around the large hospital city block in my wheelchair. Along busy Victoria Parade avoiding able-bodied pedestrians going about their busy daily routines. We stopped for a light lunch. A non-bedside meal was great. It can't be understated how terrific it felt to feel the fresh air and warm sun on your face after one month inside. Even if I was in a wheelchair. I’m wondering if this is permanent now? A drastic turn of life events unfolding right before my eyes. I thought  I would likely become wheelchair dependent . One gets a totally different perception on life from a wheelchair. Is it a permanent part of life now? Who knows!  Medical staff were not telling anything. Not wanting to give false hope. One morning reaching for my trusty bedside walker I slipped off of the bed and onto the floor. Unseen by nursing staff. Heavily supported by the bedframe. I managed to pull myself up.  Luckily I was ok. Mentally scolding myself. Don’t let it happen again. The walker was required to shuffle to the ward shower once daily. I am only able to twist shower taps a fraction of a turn. Dribbling the shower water freely over me. Now my arms and hands are too weak to grasp and hold shower utensils. Although it was offered, I didn’t want nursing assistance.  What a predicament to be in. Weak as a baby. Autonomic nervous system dysfunction can occur with CIDP. In my case, hints of autonomic system involvement appeared but thankfully no progression occurred.  These serious symptoms range from incapacity to breathe, double vision and sight deterioration with optic nerve damage, bowel & bladder dysfunction, total loss of ambulatory function   and cardiac irregularities. All due to nerve and muscle interactions within the body. Symptoms as mentioned may or may not occur. Hence, why my five week hospitalisation and medical specialist uncertainty. I googled as much as l could about CIDP with fumbling hands. Countless times the phone fell out of my grasp and more often than not I’m unable to enter search words with one finger. Loss of finger\hand dexterity caused repeated failed attempts.  At home sitting by the desktop computer I could touch type. An impossible task now. Even if I had a full size keyboard.  Often my thoughts wandered back to Broome and the Kimberley Islands. Myself and shipmates able-bodied on those island excursions. Drawing circles in the sand. Our own island fun with impromptu sand crab racing. Amazing experiences. If they could see me now. I would not be allowed anywhere near a ship with mobility issues. I was barely able to access and view phone photos. For all practical purposes confined to a hospital ward bed. A walker by my bedside that I was reluctant to use because of extreme difficulty. A ward patient startled the life out of me. In the early hours I opened my eyes to see a fellow in a dressing gown sitting on a chair in the corner of the multi bed ward. He explained it’s too hard to gain sleep. So he stayed awake all night thinking. Thinking about his health and future. He survived a cardio scare. That’s why he was here. Too concerned to sleep. The two of us are strangers. Both of us up for a chat in the very early morning. It’s a very long day when I wake early and gain sleep late at night. Compounded by the inability to move about freely and difficulty to access media by phone. Inpatient Rehabilitation  💦  I   spent five weeks in St Vincent's Hospital Melbourne followed by nearly a week of inpatient rehabilitation. In a facility even further from home in the eastern suburbs of Melbourne. I wrongly interpreted my transfer was meant to be to Ballarat and closer to home. I misunderstood the brief conversation in the rushed hospital environment where everybody is a stranger. Train of thought interrupted by major upheaval and disruption to daily life. Understandable considering the circumstances. Once the misunderstanding was sorted. I was transferred to the eastern suburbs rehabilitation facility. Once there I discovered the ability to use a walker for short inside walks. I watched through the window from my hospital bed a pair of hot air balloons very low above buildings. Nightly tv news said they made an emergency landing nearby. I thought at least these people had access to the outdoors and were not confined to a hospital. Transferred again. This time I was transferred to Ballarat and to a large regional rehabilitation facility. I was driven there by an ambulance. I sat next to the driver for the two hour trip. It was encouraging that I could actually sit as a passenger and be able to get in and out of the passenger seat unassisted.  Fellow Patients There was another patient in the back of the ambulance for the entire drive. A sedated female stroke patient, by appearances not yet at retirement age, nearing end of life. We drove her to the same palliative care facility where my wife spent her last weeks. The palliative building was adjoined to the rehabilitation complex. It was a solemn two hour ride for me. The driver focused on driving and offering little conversation. Not that I felt like chatting. I did not mention to the driver I had been to the palliative care facility once before. Walker and Red Tape I was admitted to rehab. and to my surprise given my own room. By appearances just like the hospital wards I was all too familiar with. A staff member wrapped my walker handles with red tape. Red tape is replaced with green tape once walking is assessed as safe unsupervised. I was mixed in with recovering stroke and cardiology patients. I spent regular physio sessions among patients clumsily sliding Domino pieces around table tops. Myself more advanced than those with stroke recovery. I began creatively and carefully building a multi level square house from a pile of Domino pieces. Only for it to suddenly collapse under fumbling fingers. Fellow participants enquiring how I was able to do that? I replied I was here not because of a cardiac episode or a stroke. Of course no one had heard of Chronic Inflammatory Demyelinating Polyneuropathy. Both my feet are equally affected by CIDP induced peripheral neuropathy. Can I eventually learn to walk normally unaided? CIDP uncertainty plays mind games with you. Twice a day in the early morning and mid evening l decided to attempt a circuit walk around the ward corridors and nursing station. Outside of structured daily physiotherapy sessions. Against the red tape supervision rules. I felt competent enough as long as I used a wheeled walker. I am not normally one to go against guidelines. I wanted to be proactive. I decided I would pay heed to the advice if questioned. Pushing my walker my hope was to progress from red to green tape. My aim was to complete ten laps. All exhausting work. Rolling past other inpatient rooms. People such as Mark, who was paraplegic from a diving accident and found it hard to face the day. Bed sheets pulled over his body and head. Thinking I'm not wheelchair dependent anymore as I was nearly two months before and now able to use a walker these last seven days. I self-recalled a road trip to Townsville Queensland. How fortunate Max the pilot and I were from the Tiger Moth joy flight forced landing on the then under construction Mackay Ring Road in 2018 with a broken crankshaft sustaining no injuries. Especially spinal injuries like Mark. Thinking of the inhouse gym physio sessions both Mark and I attended. He is in his wheelchair. Apparently, a potential fate I have now avoided twice within the space of twelve months. I rolled my walker past the longest inpatient resident. Leslie, a double amputee. One amputated foot and one amputated arm past the elbow. He wanted the rehab. facility to become his permanent home. Of course this is not allowed. I rolled past the recreation area with its chairs, television and a bookcase of overflowing books and assorted magazines. I rolled past the unattended nursing station and turned back toward the wards. Unknown Outlook on Recovery   Towards the end of my stay two female physiotherapy staff were to take me to an adjoining building with a two storey stairwell. A formidable structure in my mind. Attempting the stairwell was very exhausting. I was supported all the while taking small steps and resting legs. Descending the stairs is more of a problem than struggling up to the top. Could have taken a cut lunch with the time it took. Still, it was something achieved. Physiotherapy staff were faultless guiding and physically supporting me on how to walk. They dealt with my strong safety concerns and poor expectations. Self-balance was still a major issue. Once every four weeks I received an IVIG infusion of Privigen. The initial loading dosage was calculated by patient weight. All future dosages were unchanged even with weight variability. Taken daily, an Azathioprine (immunosuppressant) tablet. Given to counter progression of CIDP. Green Tape Approval All attending doctors were unable to provide a prognosis. Using my walker in rehab. Now authorised with green tape I asked a visiting neurologist if this is true. I garnered information from Google. Inquiring from my rehabilitation ward bed. One third of CIDP patients are wheelchair bound for life. One third recover to near their former self and one third are somewhere in between. CIDP by definition is often characterised by a relapsing – remitting course. The severity and duration is unknown. The neurologist nodded in agreement and replied I wasn't in a wheelchair anymore. I also now thought at least I could walk with a walking frame and green tape. Will this be the new normal? A walking stick wrapped with red or green tape is still far beyond my capability. Unease on Ability for Future Home Self Care In an adjacent ward a recovering stroke patient was due to be discharged in the next few days and suffered a lengthy seizure becoming unconscious. Drugs were administered to him to regain consciousness. Not exactly instilling in me the confidence of the rehab. centre’s assessment on my readiness for my imminent discharge. I was wondering how I will cope by myself at home? No at home Care Plan was planned or established by the medical profession. My thoughts were that future welfare dependency was inevitable. One of the facilities visitors was the minister of my local church. A coincidence chance meeting. With myself pushing a wheeled walking frame together we attended the adjoining palliative care facility to give thanks again to staff from two years ago. But the familiar staff I remembered had moved on. The Minister's comforting presence and support was greatly appreciated. I was visited only once in Ballarat Rehab. Day Pass Out Refused A longtime friend agreed to drive me home and back for a day on an upcoming weekend. This meant a return drive of three hours. However, on presentation at the main entry reception the facility person-in-charge refused me a pass out. I was judged too high a risk to be given a pass out due to the current summer heat wave conditions. With disappointment prevailing. I apologised to my driver for the wasted long drive. I would have liked a short break from the hospital environment. Now unable due to doctor's orders.  I was approaching two months of unbroken hospital stays and still I cannot return home. Within another week I was discharged. Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) Google searches in hospital and rehabilitation did allow me to flush out CDIP knowledge. I began an arduous task gathering a list of questions to discuss with my neurologist on the next forthcoming appointment in Ballarat. The appointment is still months away.  CIDP is a rare neurological disorder and targets your body's nerves all of which interact with the muscles within the body. Symptoms vary widely among individuals. Characterised by progressive weakness and impaired sensory function in both legs, feet, arms and hands. Weakened respiratory muscles are a common symptom. CIDP prevalence is approximately 600 people in any one year in Australia of a population of 25 million. Not hereditary nor infectious. Not a psychiatric or nervous disorder. Causes inflammation of nerves and nerve damage primarily to the insulating myelin sheaths around nerve fibres. Classified as an autoimmune disease. The disease may occur at any age. More so in older adults past fifty years old. No known  causes of why the immune system attacks the nerves of otherwise healthy people. A positive diagnosis of CIDP is possible with evidence of damage to peripheral nerve myelin from nerve conduction tests and a lumbar puncture. Quadriplegia and or respiratory failure causing death has been cited in rare instances. Guillain-Barre Syndrome (GBS) is regarded as the acute form of the condition. Rapid onset of symptoms distinguishes GBS from CIDP. Symptoms remain chronic for CIDP. The attack on my health is now identified by name. I now was aware my symptoms had a medical term. Hospital Rehabilitation Discharge  😀 I required home help with housework and to be driven about. I was physically incapable of driving. A home help service was made available usually once per week for the following several months and was provided by local government providers. Prior to approval and following rehabilitation discharge, I needed to seek out and enquire if I met eligibility requirements for this health service. I was told I did meet eligibility. However, there was a monthly fee payable. Also, I qualified for long term podiatry services for a nominal fee. I was thankful for services provided even if it was at a personal cost.  In the months after hospital discharge, I used a walking frame with just a walking stick on very brief occasions. My duration of home help care was uncertain. Home Self Care Struggle It was a big struggle to walk. Collect mail from my front yard letterbox and feed the cat and dog in the backyard in the initial four months. There was great difficulty twisting household taps and dressing daily. I enrolled in physiotherapy as an outpatient Also hydrotherapy. Unable to write in a legible manner. A little embarrassed about this I signed an X  on the paperwork. Staff assured me considering my difficulty in grasping a pen that an x was acceptable. Staff were flexible on my course of physiotherapy and the program was tailored to my needs. My physiotherapy program was extended on multiple occasions. Walking severely restricted by weakened legs, peripheral neuropathy of both hands and feet,   (paraesthesia) and CIDP induced severe tightness around the torso. Symmetrical left and right of the torso. Torso tightness may be described as banding, tapering to the spine. Local Hospital Infusions My local hospital provided monthly IVIG Privigen infusions in their Oncology centre. For people unfamiliar in the setting. A comfortable armchair style infusion chair is provided accompanied with an IV bag and solutions and an infusion pump monitor; this is a portable machine on a stand with its clickety-clack rhythmic beat set to an adjustable programmed flow rate by nursing staff. In due course the old iv pumps were replaced with new silent models. Oncology staff offer patients freshly cut sandwiches and a choice of cold or hot drinks such as juice, tea or coffee. Staff occasionally tempt people with scones and fresh cream. Initially during my first local infusion appointments I was just grateful to hold a hot beverage in one hand and open the lid of a small plastic sandwich pack. I remembered my repeated failed frustrating attempts just a few months previously. One infusion day coincided with my approaching birthday. No need to change dates. I viewed it as just another day. No cake or candles for me.  All infusions are carried out in the same wards, with the same familiar nursing staff and the same infusion method my wife received for cancer chemo treatment. The same familiar medical equipment. Two years on. Here I am. Surrounded by everything I wanted to forget. In my mind cancer kills and CIDP cripples. Me, a distressed witness of prior circumstance. I was back in the same environment and building. I reminded myself it's all for the best and left it at that. Accepting the hard physical and mental health challenges that I knew lay ahead. Poor Ambulatory Function I was struggling with poor ambulatory function longer than seven months post diagnosis. For example, the assistance of three people was required to descend a vehicle dealership's long flight of stairs. Assistance was required from the front, back, side and guidance of the guard rail with frequent stops. As I lived alone and struggled daily with CIDP I considered applying for Meals On Wheels. I gathered I did not fit the age criteria for the service. On occasion a family friend, who was a prominent member of a local church, delivered a cooked meal. I greatly appreciated it. More than nine months passed and I was in-effect housebound and isolated. In the latter half of 2019 my mobility had improved and I was not entirely housebound anymore. Medical approval was given to drive a private motor vehicle subject to future review. On the eve of the Covid-19 lockdowns of a five km radius from home. Bitter sweet timing as I have always been a driving enthusiast. Thankfully, driving a private vehicle was not permanently revoked such as all commercial and volunteer driving was. Hoping for Some Relief & Long Term Improvement Normal touch sensation had long since returned. For many months everything was literally like coarse sandpaper to the touch. Even to pat the dog and cat. Initially the first twelve months of abnormal unpleasant foot sensations of crawling ants on skin and sometimes legs to doubt one's sanity. I did not develop hand tremors or leg cramps. These are symptoms some people diagnosed with CIDP report. I confronted significant immobility struggles and home isolation in the twelve months preceding the COVID-19 pandemic. As I was immunocompromised COVID-19 vaccines were required. Four injections were completed. I was aware that in the most dire of Covid-19 hospital patients, a hyperactivated immune system triggers a cytokine storm in the lungs, a life-threatening condition. Twelve months of weekly outpatient physiotherapy sessions were COVID-19 interrupted and eventually stopped all together. I needed to think outside the box to address isolation, boredom and limited mobility during COVID-19 and frequent Victoria state wide lockdowns. I purchased Virtual Reality hardware and software for the home desktop pc. I watched 3d movies in a virtual reality cinema. VR offered a very real comforting feeling of freedom, experiences and escape from over twelve months of CIDP immobility. I also continued developing my own road trips website. Self-taught through trial and error. I navigated isolation and restriction challenges of COVID-19 without infection. I told myself best to keep busy. Psychically and physically busy when possible. Mental Health I was made aware of a free twelve month government counselling program made available for people to boost their mental health during Covid-19. Although I was fine. I thought this may be a good program for me to view as insurance. In the event I suffered a total CIDP relapse. I signed up. The female counsellor was supportive and for one hour once every three weeks a local consulting clinic was attended. Home appointments were also approved. I used the service as an outlet to express CIDP concerns and to maintain a positive attitude. Although beneficial, I viewed it as irrelevant unless I had a total CIDP relapse back to square one. I viewed the program as my insurance backup. A positive strategy if the worst occurred again.  Unfortunately, CIDP is always full of uncertainty for everybody. No prognosis can be assumed. Needless to say, maintaining a positive mindframe is very important. Very hard to achieve by yourself without some outside support.  Don’t ignore support when an opportunity arises. Five Years of CIDP The National Library of Medicine  (USA) has available scientific literature online of a small study detailing the long term prognosis of chronic inflammatory demyelinating polyneuropathy. A five year follow up of thirty-eight cases with no comorbidities. Source is from, Journal of Neurology, Neurosurgery & Psychiatry.  An informative paper the layperson can largely understand. Following is a five year summary after my CIDP diagnosis and subsequent IVIG infusions. The ongoing purpose of infusions is to maintain patient ambulation while encouraging a healthy autoimmune response to the peripheral nervous system. Since late of 2021 no mobility aids or home assists were required. I have no comorbidities with CIDP. Chronic peripheral neuropathy is commonly associated with diabetes. I am not diabetic nor pre-diabetic. Nerve Pain  😨 No muscle atrophy. Although persistent daily neuropathic pain was experienced for three years in the torso and feet. No nerve pain medications were offered. Tempting to ask for but not wanting prescription addiction. This was not out of a sense of a noble thing to do. I know high dosages of long-term pain prescriptions are decremental to health. With the benefit of hindsight some nerve pain medication should have been requested and taken. Nursing staff occasionally ask patients the level of pain felt on a scale of one to ten. Ten being unbearable and one no pain. I felt about six\seven or higher with my nerve damage. Is this an over exaggeration? Well, there were times lasting up to an hour or so that lying flat on the loungeroom couch at home and staying perfectly immobile was my only option. My own ad hoc positive strategy without prescription meds. Albeit with hindsight, not recommended. At times it seemed like the only option to keep daily flaring nerve pain at bay. Some may seek comfort in alcohol as a pain release. I viewed alcohol as a poison to the nerves. Creating more problems if abused. A few glasses at most is enough.  Meds should have been requested. Prescription opioids, no thanks. I always tried to focus on pain misdirection instead. Do light activities for the mind and body to push invasive nerve pain aside. It’s surprising how effective this method can be when put to the test. Another major factor in the decision not to take nerve pain medications was the on-going ability to maintain uninterrupted nightly sleep. This was a great unexpected bonus. How was it possible? After random daily flaring of nerve pain. I don't have the answers.  Nerve pain abated somewhat after four years. Perhaps down to a two or three on the pain threshold? No separate health issues. Three Years Living With CIDP During the initial three years.  The need to rest extremely fatigued legs and arms whilst attending appointments, in supermarket queues and public places. Three years of short daily showering and brief house tasks for the same reasons.  This brought a forced change in personal presentation. Velcro strap running shoes with no laces. A sock puller for dressing. Trousers and shorts without zippers and buttons. Buttonless shirts . No  zippered pullovers nor jackets. I was effectively forced into early labour force retirement. For example, a long three years from hospitalisation to slowly walk for more than thirty minutes. Mow a small lawn without resting legs. Three years until regular attempts at extended car driving. Also, the ability to be able to hand wash a car uninterrupted by multiple rest breaks for fatigued legs and arms. I've always enjoyed driving. Great to not feel significant under the ribcage wincing from torso tightness, (abdominal nerves inflammation?) over every minor highway jolt and bump.  Three plus years to get to near normality. Will this be maintained! Or will I experience a relapse? During 2022 I wanted to see for myself if my driving ability was up to standard and satisfactory at this time. I completed a thirty-minute driver experience on the Bend Motorsport Park racetrack in my own vehicle. This with a six-speed manual transmission in a Mustang GT. Tough on fatigued legs but safe, fortunately, all went well and it was a great boost to driving confidence. The full thirty minutes was completed.   People say you look well and move reasonably. Yeah well, looks are deceiving with CIDP. One busy long weekend after alighting from my performance car I received loud verbal abuse from an outside dining café patron for parking in a disability spot. The displayed permit unseen. I replied I have CIDP. Look it up on Google. It 'll scare the hell out of you. A war between nerves and invisible antibodies through most of your body remains unseen to all. All these personal milestones and more were not guaranteed. An estimate on time taken to gain improvements, if any, cannot be obtained from the medical profession. It's the uncertainty nature of CIDP. My three year disability Parking Permit renewal was twice refused and not renewed. Even with General Practitioner doctor input and submission. Probably because of the eligibility criteria assessment to use walking aids within a one hundred metre distance. Leg fatigue was still a major issue even though aids were no longer used. My believeth was that the Permit would be deemed unnecessary in twelve months' time anyway. Four Years Living With CIDP After four years  of incremental improvement and at last, reducing nerve discomfort. Improvement also shown around the torso. In my own mind, a relapse and a wheelchair scenario was not expected again. I experienced throughout this time the ever present, unpleasant feelings of large, rounded stones/balls under both feet. Symptoms associated with CIDP neuropathy. CIDP impacts nerve myelin, nerve axons and causes inflammation of nerve roots. If nerves are too damaged, limited or no long term healing is possible for the unfortunate.  Medical papers cite nerve regeneration is 1mm per day or about one inch per month with no active disease. On occasions I felt nerves were repairing. This probably was the case. My hope was that IVIG infusions would lessen the severity of damage and allow recovery to take place. Neurologist Appointments and Tests  👍 Undertaken not more than once every twelve months by a neurologist a nerve conduction study  revealed improvements in lower limb nerve conduction and functionality. It had previously been assumed a plateau was attained. This was incorrect. Small improvements greater than fifty months from diagnosis were still achievable. These improvements were not really felt in a practical sense. Nerve conduction was outside of acceptable parameters. Shows further improvement is possible even after fifty months. By way of an explanation. A nerve conduction study involves the combination of two electrodes placed on the skin of an arm or leg above a length of a nerve and electrical conduction is measured between the electrodes. Multiple nerves may be tested. The person quite often experiences a small amount of discomfort when the brief electrical shocks are applied. The shocks are low voltage and so are harmless to anyone.  A four year  MRI scan follow up was completed of the spine and cranial cavity. Dye injected. Not less than a one hour process. An investigation into chronic torso tightness since the initial CIDP diagnosis four years previously. A scan for demyelinating disease and lesions of the central nervous system. The conclusion was of no demyelination or lesions identified of the central nervous system. Normal scan result. No nerve entrapment or Multiple Sclerosis (MS) pathology. No additional neurological problems. CIDP is a peripheral nervous system condition. There is no spinal or brain involvement in CIDP. Now I am experiencing almost pre-CIDP ambulatory and strength function, except lower limbs. Walking a moderate distance is ok. Sixty minutes. Normal pace. No walking aids are required. This is a significant bonus. Support Group I considered joining an Inflammatory Neuropathy Support Group. A google search revealed one such group in the eastern suburbs of Melbourne. The nearest group to my home. It’s been over four years and I haven’t met anybody diagnosed with GBS or CIDP. Maybe it's about time I did. Legally I was cleared to drive. A drive to the far side of Melbourne and potentially heavy traffic in a city of five million left me with a feeling of trepidation. Travelling by train wasn’t practical. Upon enquiry, all meetings scheduled every few months always fell on an early Sunday afternoon. Solo and with no backup driver I decided to attend a two hour meeting. For me the drive was over Westgate Bridge and through the road tunnels on freeways to the eastern suburbs. Meetings are held in a room of a suburban library. Upon arrival all are greeted by the group organisers. Tables, chairs, light snacks and drinks are provided. Meetings are attended by perhaps fifteen to twenty-five people. I was by far the longest traveller in the group. A diverse gathering. Young adults to advanced age and all levels of physical disability. A few wheelchair equipped. All in attendance were introduced and name tags adhered on clothing. Every meeting has an invited guest speaker relevant to the field of rare neuropathy conditions. Fields such as nursing, rehabilitation and neurology specialists. Especially relating to GBS and CIDP. I was taken aback by meeting new people and not having to explain CIDP. Many share their individual stories. One man a little younger than me was on double crutches. He had a CIDP diagnosis and said he was amazed I drove so far to attend. I explained my recovery to the present time and his face lit up in hope. Realising that he may be able to get back to driving. The benefits of attending such a support group should not be underestimated. People gain insight and encouragement. In a friendly environment. Five Years Living With CIDP On approaching five years  of CIDP. Residual symptoms include: moderate symmetrical and ceaseless tingling felt underneath both feet. Mild tingling in the hands. Mild torso tightness and mild symmetrical weakness in legs. Normal touch sensitivity in hands and feet has long returned. Taking a daily tablet of Azathioprine has ceased. However, a routine blood test is taken in a medical clinic every few months to ascertain nothing abnormal.   IVIG infusion is still ongoing and is now changed to Privigen infusion of 40g completed on one day, six weekly and up to a four hour duration. Instead of over two days every six weeks. If all goes well after an extended amount of time, infusion will be pushed out to an eight weeks duration. The purpose is to halve hospital attendance to one day and to avoid possible or probable multiple failed attempts of catheter (I.V. needle) insertion into a vein due to poor venous access.  The merits of self-administered s ubcutaneous immunoglobulin (SCIg) infusion may be an option for future consideration if infusion attempts are increasingly problematic. Time to underscore CIDP.  Obviously, no progression or relapse.  Discontinuation of IVIG is unlikely?  In my opinion, it is a medical specialist decision! Know one’s limitations. Particular good advice on physical disabilities such as CIDP. Be realistic. On the other hand, don't dismiss what life offers. If not permanently bedridden be grateful. The old saying, 'There's always someone worse off than you’ is still relevant. Acknowledging this. The obvious answer is to endeavor to focus the mind forward not backward. Don’t give up on a fulfilling life. Often it’s the mindset we need to overcome. It’s never too late to start. Read examples below. Beyond Five Years, Birdsville  ⏳ I regard myself as a driving enthusiast. I enjoy travelling within Australia. During May 2024 I completed a nine day tour as a passenger in a Toyota Landcruiser to the famous outback town of Birdsville in Outback Queensland. A return distance of 3,400 km Adelaide to Adelaide, South Australia. I drove myself 500 km to Adelaide to begin the tour. Return to home base was driven in one day. The roadtrip a lifelong ambition. On no part of the remote trip special allowances were made because of ongoing CIDP symptoms. Nor was personal enjoyment diminished considering much travel was on unsealed and sometimes rough roads. Birdsville has a population hovering around one hundred. The one and only hotel is arguably the most famous Outback hotel in all of Australia. The Green Lizard Lounge available. Our tour group of three Howard, Jan and I ate a hearty meal. I grabbed a cold beer in a large glass and sat outside under the hotel's iron sheet awning on the iconic veranda. A sturdy pew timber bench and a backrest provided seating. In next to no time bush flies were bothersome in the rising afternoon temperature requiring a return to the airconditioned hotel interior.  We visited the Birdsville Bakery for one of their renowned curried camel pies. I was confident of holding a mug of hot coffee in one hand. Unlike shortly after my CIDP diagnosis. We even drove up a red desert sand dune thirty-five km out of town. The legendary dune called ‘Big Red’ on the edge of the formidable Simpson Desert. Standing forty metres above the surrounding plain. One hundred and thirty-one feet. The fine powdery red sand of Big Red seems determined to engulf anyone attempting to climb the peaks of the surrounding crests, with each footstep sand engulfing past the ankle and sand cascading past the wrists, when looking to gain traction to top the crests. Despite the daunting terrain, with perseverance and a crab-like movement, it is possible to reach the highest crest of ‘Big Red’ amongst the endless rows of dunes. Fighting swarming flies away from your face. The shifting sand constantly threatens to pull you down. The panoramic view from the top, however, makes the effort worthwhile, offering a breathtaking vista of the vast red desert, low hardy bushes and small green spindly clumps of grass clinging to the landscape. A reminder of the raw beauty and harshness of nature. The return drive to Adelaide was down the famous Birdsville Track. We found overnight lodgings in the Mungerannie Hotel halfway down the track and found a new friend in Sammy, the friendly kelpie dog playing an amusing game of fetch the stick for us tourists. Sammy jumping in mid air, his mouth catching a thrown stick.  Our tour group of three and everyone we met on the outback road trip were fantastic characters. All getting along with each other. All my tour optional excursions and activities were completed as normal. Proof of CIDP symptoms receding to the back seat for once. Pun intended! Although significant improvement takes a very long time and gains are uncertain.  With the passage of time CIDP symptoms may eventually fade and not permanently worsen. I hope this is encouragement  to those newly diagnosed. A return to living near a normal life is possible with Chronic Inflammatory Demyelination Polyneuropathy. Infusion Side Effects? My IVIG infusion dosage has never been greater than 40g. The first few years were infused four weekly then six weekly, followed by every eight weeks. I have not experienced any significant decreased mobility between IVIG infusions as many do. I have never experienced an adverse reaction to the infusion flow rate of IVIG. Reaction after-effects may include headaches and nausea. In my opinion it is best to seek, evaluate and trust answers from specialists and hope for the best. CIDP is not predisposed by any prior physical, mental health or lifestyle attributes. It is not hereditary or contagious. It's a rare condition. General Practitioners rarely see it, if at all. CIDP Quality of Life All of the above gives an insight into CIDP. At least as applicable to one individual's experience. Hopefully all the aforementioned addresses a lack of awareness and knowledge of Chronic Inflammatory Demyelinating Polyneuropathy. All things considered; quality of life has returned. Time to reflect on my CIDP experience. Then, and how I am now. The freedom of walking unassisted in the outdoor fresh air under a warm sun. Enjoying home and no need for mobility support. Walking the front and backyard. Unassisted.  Long drives in the diverse Australian countryside. I managed a return drive to Broome in the winter of 2025. Something I honestly thought would never happen again. Also, a detour to Marble Bar. The hottest town in Australia and a favourite town of mine. I’m able to enjoy driving the Great Ocean Road again with sweeping ocean vistas.  The everyday pleasures. Pleasures such as a daily morning coffee.  A one hand coffee. I often smile while holding a hot coffee. Why? While the hot coffee may be great. It’s even better to be able to hold the full mug in one hand.  A CIDP diagnosis and pathway is full of uncertainty for all. Don't dwell on anything that may never happen or recur. I find it best to be honest  and patient  with yourself.  Don't say why me!  CIDP is a treatable condition. Treatments such as IVIG infusion, plasma exchange and corticosteroids are available to neurologists for consideration. Amor Fati Despite all the aforementioned I still consider myself fortunate to feel and see real progress. I don't seek sympathy. In my experience empathy for rare hidden conditions is improbable outside of immediate family.  CIDP awareness would be a start. We don't get a choice of autoimmune or neurological disorders.  These disorders cannot be prevented by lifestyle choices. It is our choice  how we choose to respond and live our lives. If nothing else, my CIDP journey offers food for thought.  There is a Latin phrase. Amor Fati.  Accept one's fate, find the elusive positives and move on. Amor Fati Wayne PREV CIDP NEXT HOMEPAGE

Traveldriven Travel Experiences. Welcome to the Home Page of the Traveldriven website. All are welcome to browse page posts and leave a comment. There are upwards of two hundred and seventy individual page posts. All posts have commentary, photos and videos. Why Browse Traveldriven? Needless to say, we all only want to know about and see what we are interested in. In the quickest and easiest way. Preferably, with an honest firsthand insight and personal experience. This is what Traveldriven is about. Also sharing a few amusing, and a few concerning travel experiences. To share the driving experience and destination. The good and not so good. You and others might also want to go out and see these locations firsthand. All are free to browse page posts for travel ideas. The purpose is to show with pictures and video to those who don't know or have little knowledge of how large and diverse Australia the land and people are, a glimpse of the vast country of Australia. Why Not Fly Within Australia Instead of Drive? Aside from capital cities, only the largest major regional hubs are served by domestic commercial jet flights. This includes Australia's tropical northern centres like Broome in Western Australia, and Cairns, Townsville, and Hamilton Island in Queensland, as well as the Gold Coast near Brisbane. In the central Outback, Alice Springs and Uluru (Ayers Rock) in the Northern Territory also have airports serviced by commercial jet carriers. During the tourist low season of the northern wet season summer months in Australia, when flooding cuts off many roads, and the countryside is lush and green, low airfare jet flights to northern Australia might be more practical. From a flights and accommodations budget point of view. Although once on the ground, the frequent storms and the uncomfortable oppressive humidity make getting around difficult and would be fairly restrictive. The northern Australia monsoon season especially from December to March brings widespread flooding and road infrastructure damage. In short, the winter months of June, July, and August are ideal for travelling to northern Australia. Additionally, relying solely on domestic commercial jet flights with minimal or no driving means missing out on the most picturesque parts of outback Australia. Fly and Drive, Rail or Road Trip? Numerous larger town airports in Australia provide domestic regional flights operating smaller passenger light aircraft; however, these flights are typically quite costly and may not operate daily. Rail travel is an alternative, but it usually is quite expensive for several days of interstate journey by sleeper rail car. None offer the flexibility of a road trip and the convenience of a road vehicle for many weeks or months of travel. To state the obvious, sightseeing and stopping at random places of interest is impossible from a commercial flight. Flying and renting a car is another option for short trips of a week or two, but total travel costs increase significantly for longer journeys without your own vehicle. Be aware, even to fly and drive, travelling for less than two weeks in the Outback imposes an unrealistic time constraint to see all but a few of the top attractions on one trip. Many travellers may have to preplan and cherry pick just a few outback attractions if the available time is less than two weeks. More time is essential to explore more than just a small snippet of the vast array of interesting locations in the northern and central regions. That's not to say a short trip can't be fantastic if expectations are kept realistic. Travel Vehicles We have all seen the fancy travel rigs. A hundred and fifty thousand dollars or much more for the vehicle and towed travel van. All well and good for those with the budget. Traveldriven has used swags, small tents, basic vans, motels and bush hotels. Some of the most commonly seen vehicles sold in Australia have been driven on travel trips. These range from family sedans (Ford Falcon), sports cars (Mustang GT) to SUVs. All Traveldriven trips pre-2025 are without a towed vehicle. See What Is Out There It's not about what means of travel you have or budget but getting out there and doing. Weather being solo, with family or friends. All Traveldriven posts are about places where ordinary travellers may like to go. Travellers like you and I. Almost all destinations in mainland Australia on this website are within reach on sealed bitumen roads. Without the need to own or hire an expensive long range offroad specialised vehicle. Just everyday driving skills are required. With a little basic knowledge and common sense. You can drive to extraordinary locations . Enjoy, relax and to seek out new places of interest. Having said that, depending on the time place and local events, things happen. Read the following to quickly go to a page post of interest. A few posts are of places not within Australia. It's great to gain a perspective on life outside of country of birth. If only to compare and appreciate your corner of it. Traveldriven TAKE AN OUTBACK BREAK BIRDSVILLE, QUEENSLAND TRAVELDRIVEN ONE MINUTE SNAPSHOT Australia and Bushfire Survival Every State in Australia is of risk of major bushfire breakouts. It is good to know the basic do's and don'ts in these fire prone environments. Not only overseas visitors but residents of Australian cities travelling to country area's should know how to pay heed to the dangers. A Traveldriven first hand example is given in the following post: https://www.traveldriven.net/single-post/bushfire-wildfire-or-forest-fire-survival Timber Creek, Northern Territory Australia is generally a safe country for travelling by road. However, be cautious of potential issues with wildlife and people. For first time Outback drivers a safe Outback option is to stay within the National Australia Highway Network, which offers good roads and communication. Many sealed highways, but not all, have mobile phone coverage. It's not uncommon for no phone or GPS reception for hours of driving. All sealed highways have some daily traffic and travellers if in need of outside help will get assistance from other travellers. Nevertheless, Outback areas remain very remote, often with police, hospital and vehicle breakdown services three to four hours away by car. It is foolhardy and may be life threatening to rely on or expect help from patchy or non-existent mobile phone reception in the event of an emergency. At a minimum an inflated full size spare tyre and ten litres of drinkable water should be carried for safety and peace of mind. Timber Creek is a small outback settlement 185 km from the Western Australian border. Read how serious situations may develop from doing nothing wrong. Encountering local wildlife endemic to the tropics (not saltwater crocodiles) and people. Go to Page post: https://www.traveldriven.net/single-post/australia-big-righthand-turn-2 South Pacific Islands Vanuatu and Inyeug Island. Stories of head-hunters and the visiting cruise ships. The islands are nearer to Sydney than Sydney is to Perth in Western Australia. Go to Page post: https://www.traveldriven.net/single-post/south-pacific-island-of-inyeug Cruise Kimberley Islands Hop aboard the MV Oceanic. A converted Rottnest Island ferry. Adventure cruise the Kimberley Islands of Western Australia for seven days. A firsthand experience of what sights to expect to see and the experiences in this offshore region. Tourist requirements are really just to have the ability to walk for five minutes or so and have a curiosity of the truly spectacular scenic Kimberley Islands unfolding all around. Both in seascape and landscape. Go to Page post: https://www.traveldriven.net/single-post/australia-cruise-kimberley-islands-mvoceanic Great Barrier Reef Islands Whitehaven in Queensland, Australia's most famous beach non-Australian's have probably never heard of. Whitehaven truly lives up to expectations. Just a short inexpensive daily tour boat trip from Hamilton Island. Go to Page post: https://www.traveldriven.net/single-post/2020/05/31/whitehaven-beach Hamilton Island & How to Sail Solo Hamilton Island is a major tour mecca of the Great Barrier Reef. Serviced by all major Australian airlines and capital cities. Read how its done to sail cheaply and solo with little to no sailing experience on a four man catamaran. Go to Page post: https://www.traveldriven.net/single-post/2020/05/31/hamilton-island Australia Travel Icons Who hasn't heard of the Twelve Apostles on the Great Ocean Road in Victoria! Within eyesight are the Gibson Steps. Take the one hundred cliffside steps down to the beach. Wild surf batters the beach. Breathe in the salty air. Don't do a Harold Holt (ex-Prime Minister) who disappeared in Victorian waters. If you enter the water of rips and currents at one's own pearl. You will probably never be seen again. Go to Page post: https://www.traveldriven.net/single-post/2020/05/31/twelve-apostles Road Trip Western Australia Northern Territory South Australia Australia's big right-hand turn. Day one of a solo road trip driving a Ford Falcon sedan from Victoria. A glimpse of the attractions that await travellers planning a road trip to the West. Go to Page post: https://www.traveldriven.net/single-post/2017/07/11/australia-big-right-turn-day-1 Road Trip to Townsville, Queensland Day one of a three-week solo road trip to Townsville driving a Ford Mustang GT V8 from Victoria. Including a visit to Ned Kelly country. Australia's most famous bushranger. Don't miss the roadside attractions along the trip, such as tossing a coin to the Dog On The Tuckerbox. Discover which roadside attractions are truly worth visiting. Go to Page post: https://www.traveldriven.net/single-post/2019/03/18/driving-to-queensland Road Trip to Silverton, Outback New South Wales A special weekend event to celebrate the 40th year of the release of the second Mad Max film. Parts of which were filmed on set around Silverton with Mel Gibson and crew. Enthusiasts dressed in movie theme attire. Road going replica vehicles and of course the Wasteland Compound. Do your own Mad Max adventure and drive to Silverton. Inspect the sites and see movie props and movie memorabilia. Go to Page post: https://www.traveldriven.net/single-post/silverton-outback-australia Road Trip to Tasmania Day one of a road trip to the island state of Tasmania. Driving a Mustang GT. Start of trip was on the Spirit of Tasmania car ferry Victoria to Devonport, Tasmania. What to expect on the ferry and small town tourist sights. Attractions that are worth a stop along the way to Hobart. Go to Page post: https://www.traveldriven.net/single-post/2018/02/18/mustang-gt-search-box Road Trip to Canberra Australian Capital Territory Day one of a solo road trip to Canberra driving a Mustang GT. Passing through Bendigo, Victoria and a visit to the Great Stupa. A free attraction for all. Canberra is not boring as many from Sydney or Melbourne will try to tell you. Get an insight on a few Canberra locations and buildings you should visit on your next trip. Many are free to experience. Includes a two-day detour to the famous Bathurst Motor Racing Circuit and unlimited driving time of the track. How you can drive Mount Panaroma within the law and still have enjoyment. Go to post: https://www.traveldriven.net/single-post/bendigo-art-silo-s-ned-kely Road Trip Outback 4WD Basically, anyone could do this with just an interest in the Outback and nothing else required apart from the tour cost. Day one of a nine-day road trip tour to Birdsville in Outback Queensland in a Toyota Landcruiser V8 from Adelaide. Costing roughly five hundred dollars per day (as of 2025 in Aus.$). The tour operator drives the vehicle and includes, meals, and unit or hotel accommodations for the entire trip. Go to post: https://www.traveldriven.net/single-post/work-in-process-road-trip-birdsville Grampians National Park First hand local information about the Grampians National Park and Halls Gap in Victoria. Less than a few hours' drive from Melbourne. Other websites barely mention the Park if at all. It is one of the best accessible Parks to all road going vehicles year-round within Australia. View spectacular and accessible mountain scenery. Go to Page post: https://www.traveldriven.net/single-post/wildlife-of-the-grampians-national-park Road Trip Bend Motorsport Park Within an hour's drive from Adelaide. Drive to the riverside town of Tailem Bend in South Australia and drive your own vehicle around the world class track. Track sessions are only allowed on pre-booked designated track experience days. Vehicle must be roadworthy. The racetrack driving experience is cheap and safe. High speeds are obtained. A full thirty minutes on track time. Go to Page post: https://www.traveldriven.net/single-post/tracktime-the-bend-motorsport-park Road Trip New Zealand Driving New Zealand on the South Island and a day's visit to White Island volcano on the North Island before the deadly eruption and the tourist ban. Discover Arrowtown and Queenstown attractions. Drive the scenic valley along State Highway 94 to Milford Sound via the Homer Tunnel. Agreed by many to be New Zealand's most scenic highway. View snowcapped Mt Cook from your hotel room. Touch a floating iceberg on a glacial lake. Go to Page post: https://www.traveldriven.net/single-post/2019/04/20/arrowtown Road Trip Ireland For anyone planning on visiting Ireland consider driving around Ireland. If budget allows, visit and gain fine lodgings at Ashford Castle. Or perhaps for more value for money visit and stay overnight in a haunted Castle such as Ballyseede Castle. You might experience a supernatural encounter with Hila the friendly ghost. Read what to expect as a guest and a personal non-frightening ghostly experience. Go to Page post: https://www.traveldriven.net/single-post/2017/04/15/driving-around-ireland-2015 Scotland & Nessie of Loch Ness Embark on a Loch Ness cruise across the renowned lake. On one particular lake tour, tourists on the Loch hear a factual account of the legend from a guide. The talk captured on video. The presence of sizeable aquatic creatures in the Loch's depths may contribute to the legend, though it's not what most tourists typically imagine. Hear the guide's explanation. Visit the Page post: https://www.traveldriven.net/single-post/2019/06/02/loch-ness RETURN TO TRAVELDRIVEN.NET

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) A rare neurological disorder. Targets your body's nerves all of which interact with the muscles within the body. Symptoms vary widely among individuals. Characterised by progressive weakness and impaired sensory function in both legs, feet, arms and hands. Weakened respiratory muscles are a common symptom. CIDP prevalence is approximately 600 people in any one year in Australia of a population of 25 million. Not hereditary nor infectious. Not a psychiatric or nervous disorder. Causes inflammation of nerves and nerve damage primarily to the insulating myelin sheaths around nerve fibres. Classified as an autoimmune disease. The disease may occur at any age. No known causes of why the immune system attacks the nerves of otherwise healthy people. A positive diagnosis of CIDP is possible with evidence of damage to peripheral nerve myelin from nerve conduction tests and a lumbar puncture. Quadriplegia and or respiratory failure causing death has been cited in rare instances. Gullain-Barre Syndrome (GBS) is regarded as the acute form of the condition. Traveldriven BACKYARD BREAK SMOKO IN THE BACKYARD CIDP MOBILITY ASSISTS NOT REQUIRED TWO YEARS OF CIDP (23 months from hospitalisation) Four years living with CIDP & IVIG Five years living with CIDP & IVIG Otherwise in good health, no other issues INFLAMMATORY NEUROPATHY SUPPORT GROUP of VICTORIA Melbourne Christmas Luncheon 2023 LUNCHEON FUND RAISING AUCTION NEXT, CIDP WRITTEN STORY FIVE YEARS PREV CIDP NEXT HOMEPAGE

Intravenous Immunoglobulin (IVIG) for CIDP (IVIG) is a solution of human plasma proteins and in particular IgG antibodies with a broad spectrum of antibody activity. IVIG is prepared from large pools of human plasma collected from several thousand blood donors and contains the typical IgG antibodies found in the normal population. Recipients of intravenous immunoglobulin (IVIG) therapy often find themselves on a long-term treatment regimen, sometimes requiring these infusions for the entirety of their lives. This is particularly true for individuals suffering from chronic autoimmune conditions, immunodeficiencies, or certain neurological disorders, where the immune system's functionality is compromised or needs modulation. The administration of IVIG plays a crucial role in providing the necessary antibodies that the body may be lacking, thus helping to bolster the immune response and protect against infections. PATIENT IMPROVEMENT In some cases, patients may experience significant improvement in their condition due to the IVIG treatments. As a result, they may recover sufficiently to be considered for a reduction or even cessation of their IVIG therapy. This recovery can be attributed to various factors, including the body's adaptive response to the treatment, changes in disease progression, or the implementation of additional supportive therapies that enhance overall health and immune function. Such patients may undergo rigorous evaluations and assessments to determine their eligibility for discontinuation of IVIG, which can be a hopeful milestone in their treatment journey. However, the treatment landscape for IVIG recipients is not always straightforward. Some individuals who initially qualify for IVIG therapy may, over time, find that their condition evolves or changes in a way that necessitates a shift in their treatment approach. This could be due to a variety of reasons, including the emergence of new symptoms, the development of complications, or the realisation that the current treatment is no longer effective. In such instances, healthcare providers may explore alternative treatment modalities, which could include other immunotherapies, corticosteroids, or even more novel approaches like biologic agents that target specific pathways in the immune system. The journey of an IVIG recipient is often characterised by ongoing monitoring and adjustments to their treatment plan, reflecting the dynamic nature of their health status. Each patient's experience is unique, shaped by their specific medical history, response to therapy, and the evolving understanding of their underlying condition. As a result, the management of patients receiving IVIG is a collaborative effort between healthcare providers and patients, aimed at optimizing treatment outcomes and improving quality of life. IVIG DAY ONE & DAY TWO COMPLETED OVER TWO DAYS IVIG TREATMENT INITIALLY GIVEN ON TWO CONSECUTIVE DAYS EACH MONTH LATER EVERY SIX WEEKS THEN EVERY EIGHT WEEKS IVIG INFUSION ROOM COMFORTABLE INFUSION CHAIR (NOT THE ELECTRIC CHAIR LOL) IVIG INFUSION VIEW INFUSION CENTRE CHRISTMAS TREE IMMUNOGLOBULIN INFUSIONS SCIg self-administered IVIG INTRAVENOUS IMMUNE GLOBULIN (IVIG) WHAT IS IVIG? PREV CIDP NEXT HOMEPAGE

Ormiston Gorge The gorge is situated approximately 135 kilometres to the west of Alice Springs, a central hub in Australia’s Northern Territory. Visitors can easily access this stunning natural wonder by travelling along the well-maintained and fully sealed roads known as Larapinta Drive, Namatjira Drive and Ormiston Gorge Access road. These scenic routes offer breathtaking views of the rugged Australian landscape, making the trip an unforgettable experience. Upon arrival at Ormiston Gorge, one will discover a permanent deep waterhole, a remarkable feature of the gorge that draws both locals and tourists alike. The water in this waterhole is notably cold, a refreshing contrast to the often warm and arid climate of the region, and while swimming is permitted, it is advisable for swimmers to be prepared for the brisk temperature. In addition to the natural beauty of the gorge, there are camping facilities available for those wishing to immerse themselves in the great outdoors. These facilities provide a comfortable base for exploration and relaxation, allowing visitors to fully appreciate the serene environment. Be aware wild dingo dogs are ever present and are often not seen. Dingo's will seek out food scraps and pull apart plastic bags if left outdoors unattended. It is important to note that camping fees apply for those who wish to stay overnight, and these fees can be conveniently paid online in advance. Furthermore, a park entry fee is also required, which must be settled for the specific date of intended arrival, ensuring that the park can be maintained and preserved for future generations to enjoy. BUSH ARTISTS On this particular occasion, two talented bush artists had gathered beside the riverside gums, passionately engaged in the art of painting landscapes that captured the essence of the breathtaking surroundings. With brushes held firmly in gloved hands and donning flynet hats to protect themselves from the persistent flies, they busily worked on their canvases, each stroke reflecting their unique interpretation of the picturesque vista before them. These artists were not only creating beautiful artworks but were also eager to share their creative process and the inspiration behind their pieces with curious onlookers. As visitors approached, they were met with enthusiastic explanations and insights, allowing for a deeper appreciation of the art as well as the natural beauty that inspired it. This interaction between the artists and the public fostered a sense of community and connection, highlighting the importance of art in capturing and celebrating the natural world. Traveldriven DRIVE STANLEY CHASM - ORMISTON GORGE TWO BUSH ARTISTS LEFT HAND ON THE JOB GETTING IT RIGHT ORMISTON GORGE PAINTING THE LANDSCAPE GETTING IT RIGHT READY FOR A SWIM? RIVERSIDE GUM PREV AUSTRALIA 2025 NEXT

Standley Chasm Known as Angkerle Atwatye in the local Arrernte language, the chasm is a stunning natural wonder situated approximately fifty kilometres west of Alice Springs, a central hub in the heart of Australia’s Northern Territory. This remarkable geological formation is nestled within the rugged landscape of the West MacDonnell Ranges and is an essential part of the region's cultural and natural heritage. The chasm itself is located on privately owned Aboriginal land, which adds a layer of significance and respect for the traditional custodians of the area. Accessing Standley Chasm is convenient, as it lies just off the well-maintained, all-sealed Larapinta Drive, a scenic route that showcases the breathtaking beauty of the surrounding terrain. Visitors to Standley Chasm can expect a short yet picturesque drive of approximately ten minutes off of Larapinta Drive along a sealed road that leads directly to the entrance. This accessibility makes it a popular destination for both tourists and locals seeking to explore the unique landscapes of the Australian outback. As of 2025, there is a general admission fee of $12 per person, which contributes to the maintenance and preservation of this beautiful site, ensuring that future generations can enjoy its splendour. CAFE AND CAMPING Upon arrival, guests will find a well-equipped on-site café, which offers a variety of refreshments and meals, making it a perfect spot to relax and soak in the stunning views of the chasm before or after their exploration. The café serves as a convenient gathering place for visitors to share their experiences and enjoy the local ambiance. The main Standley Chasm walk begins to the right of the cafe and is relatively flat. The walk follows alongside a creek and takes about twenty to thirty minutes. Sturdy footwear is best for the stoney areas walked upon. For those looking to extend their stay, Standley Chasm also features a camping area suitable for all types of vans. The ground is rocky and hard. Pitching a tent may be difficult. This camping area provides a unique opportunity to immerse oneself in the natural surroundings, with the sounds of the outback and the starry skies of the desert at night offering a truly memorable experience. However, it is important to note that the ground in the camping area is quite hard, with no grassy sites available, and overnight temperatures may be quite low which may require campers to bring appropriate sleeping gear for comfort. Overall, Standley Chasm is not just a visual marvel; it is a place where nature, culture, and adventure converge, making it an essential stop for anyone travelling through the Northern Territory. For an insight into Alice Springs go to an earlier Road Trip WA/NT/SA post . Traveldriven DRIVE ALICE SPRINGS - STANDLEY CHASM STANDLEY CHASM SIGNAGE INSIDE THE CHASM FAR END OF THE CHASM COLD POOL OF WATER AND ROCKY BLOCKAGE COLD WATER GHOSTLY ROCK PREV AUSTRALIA 2025 NEXT

DRIVING THE OUTBACK Day One Embarking on a long road trip is always thrilling and filled with anticipation of new experiences that await. This particular journey began with the first day of driving from within the State of Victoria and into South Australia, passing through Adelaide and beyond. Road Trip Plan The plan was to stop by interesting wayside sights and to avoid driving on country highways after dark. For safety, try to avoid night driving where the likelihood of wildlife collisions is increased. Night driving is also a risk for drivers with a greater chance of induced driver fatigue. Beginning in the winter month of May the weather was pleasant and cool, with the promise of warm and sunny days in central and northern Australia in the coming days. A viewpoint many should share is to embark on and complete such a road trip in a safe manner. Anticipate great experiences and sights, but the key is that everyone returns home safely even if this means unforeseen delays. Do not compromise safety by rushing to make up for lost time. Unfortunately, a major and unsettling event unfolded on this first day of the road trip. Highway Blocked Road Trip to the Outback The plan was to arrive in the small roadside town of Dublin sixty km north of Adelaide for an overnight stay before nightfall. But due to unfolding circumstances this was unavoidable. Some thirty km before Dublin and up ahead and spread across the highway were emergency vehicles and their flashing lights. Police, fire brigade, ambulance, SES road rescue and a short line of stopped traffic. When joining the stopped vehicles, the scene was one of desperation for emergency personal to attend and evacuate occupants of an on the road multi vehicle accident. Ambulance Helicopter Very shortly an ambulance rescue helicopter arrived and attempted to land in a roadside paddock. Thick clouds of dust kicked up from the rotor blades made it unfeasible to land, so the helicopter lifted up and circled around to land on the road centre about a hundred metres away. All the while traffic was backing up for many km or some miles. This section of straight two-lane freeway was separated from oncoming traffic by a wide centre divide. Television news reporters along with their cameramen were arriving and setting up news camera's mounted on tripods. From a personal perspective nothing could be done but to wait on the road and hope for the best outcome to all people involved. No traffic was allowed through for near on two hours until rescue crews cleared the scene. One road lane was then opened for traffic to pass slowly through. Apparently, there were no fatalities at the scene. Although urgent life support was required on at least one person trapped in a vehicle and then lifted by air ambulance to an Adelaide hospital. Dublin in South Australia The accident delayed arrival time in Dublin until well after dark with no chance to get an idea of the lay of the land, so to speak, in the now gone fading light of day. Only one service station and one hotel remaining open with no meal service at this late hour anywhere in town. A prior decision was enacted upon to park overnight next to an area called Dublin Wayside Stop. The most practical and only choice considering the late hour and the unfamiliar area. On a quirky sidenote, Dublin is home to the Giant Cockroach. This is an Australian 'Big Thing' displayed in a roadside Dublin paddock. The 'Cockroach' was at first shown in central Adelaide's Rundall Mall. The structure is made of scrap metal and was constructed as part of a local protest against a federal and state government proposal to build a large waste dump in the Dublin area. Meant to publicly shame politicians of the time. Presently the structure is situated next to Port Wakefield Road, and passing traffic on the busy road can easily miss it. Reflecting On The Day's Events Happening upon the road accident on the first day of the road trip it was a sobering experience and reminder to all to do the right thing and to pay attention when driving. All need to remember to take regular driving breaks on long road trips. Road accidents not only adversely affect those directly involved but also connected families, emergency personal and witnesses. Respect the road laws and the roads driven upon. Stay safe and enjoy the open road. Early the following day Andamooka was the next destination deep in Outback South Australia via Port Agusta. The drive under six hours from Dublin and a little over five hundred km away. Hopefully there will be no road trip Outback road delays in the days ahead. At least for a while. Traveldriven ENTER DUBLIN GOOGLE MAPS DUBLIN SIGN AT A ROADSIDE REST AREA CALLED 'DUBLIN WAYSIDE STOP' THE REST AREA HAS A SMALL GRASSED PARK, PUBLIC BBQ, TOILETS & SHADED TABLES THE PARK IS LOCATED ON SIXTH STREET & BECAME AN UNOFFICAL OVERNIGHT STAY HIGHWAY ROAD ACCIDENT BEFORE DUBLIN TV NEWS AND REPORTERS AMBULANCE HELICOPTER LANDING ON THE MIDDLE OF THE HIGHWAY PREV AUSTRALIA 2025 NEXT

Kakadu National Park The park is within the Alligator Rivers area of the Northern Territory. Kakadu covers an area almost two hundred kilometres (120 mi) from north/south and over one hundred kilometres (62 mi) from east/west. Kakadu Highway The fully sealed highway starts at Pine Creek and finishes at Jabiru. If driving from South Australia, follow the highway from Pine Creek turnoff to Jabiru a road distance of 213 km on an all sealed road and then follow the all sealed Arnhem Highway to Darwin. Darwin to Kakadu The park entrance is an easy two-and-a-half-hour drive. Distance of 210km. Along the fully sealed Arnhem Highway . On park entry, an entrance fee applies. A Kakadu Yellow Water Cruise is essential. Up to two hours, observing flora and fauna. Crocodiles and birdlife. The township of Jabiru offers tourist facilities and services. The Adelaide River Jumping Crocodile Cruise is a short river tour on the drive to Kakadu from Darwin and before Jabiru. Cahills Crossing Cahills Crossing in Kakadu National Park is about forty km further from Jabiru and also reached on a sealed road. The crossing has witnessed at least two fatal crocodile attacks. Located on the East Alligator River. One of these, a fisherman knee deep at the water's edge. Another attack killed a male walking the crossing. Widely regarded as the most dangerous river crossing in Australia. Abandoned vehicles washed into the river can often be seen. Crocodiles gather to eat fish in the murky water. Dozens of large crocs inhabit the immediate area. Safe Crocodile Viewing and Obey the Warning Signs A safe river viewing platform overlooks the East Alligator River and is off to the right side of Cahills Road river crossing. There is also a viewing area to the left of the crossing. These are safe areas to view saltwater crocodiles in the wild outside of an organised tour. Safe for families. It's not uncommon to view multiple numbers of crocodiles from the public viewing platform. Most are in the river. A few are perhaps out of the water on the edge of the crossing. Do not cross the river into Arnhem Land without a permit. Even on the low tide when the crossing may be dry. It's still unsafe to do so. Alligator River is a misnomer. Early pioneers thought the crocodiles were alligators and so named the local rivers East and South Alligator. Merl Campground Located next to the East Alligator River is the Merl Campground, where a small camping fee is required on arrival. Cahills Crossing is a short walk from this bush campground. Upon arrival, campers can choose from any of the designated camping areas that are empty. All of which offers shade and privacy thanks to the lush foliage from the nearby river. The campground has no power, and the facilities are basic. Merl Campground accommodates all types of road-going vehicles. Be aware the campground often experiences swarms of biting mosquitoes after dark, and the river should be avoided due to the presence of saltwater crocodiles. The Ubirr rock art site is three kilometres away. Border Store The Border Store renamed Manbiyarra is near Cahills Crossing viewing platform and was a general store. The store changed ownership and renovations were done in 2025 with a tourist focus on local indigenous art. Manbiyarra Border Store is open in the dry season May to October. Yellow Water In Kakadu National Park there is Yellow Water Billabong. The billabong has a countless variety of birdlife such as jabiru and whistling ducks. Saltwater crocodiles are common and water buffalo may be seen. Colourful water lily's stretch as far as the eye can see. Yellow Water two-hour boat cruises are very popular and operate daily. Pine Creek A short practical hire\drive driving itinerary in the vast distances of the Northern Territory is for a loop drive route Darwin, Kakadu, Pine Creek and return to Darwin. All on sealed roads. Pine Creek is two hundred and twenty-five km from Darwin. To follow the suggested driving loop at least one overnight stay is required to allow an adequate time for tours and see the sights. Two nights even better. Accommodation is available in Jabiru and Pine Creek. For more Kakadu information also read Darwin post . Read Pine Creek post for overnight accommodation and sights. Traveldriven ENTER CLICK/TAP KAKADU/JABIRU GOOGLE MAPS IN REALTIME DRIVE DARWIN TO KAKADU -PINE CREEK & RETURN JUMPING CROCODILE TOUR BOAT JUMPING CROCS ADELAIDE RIVER Jumping Crocodile Cruise ADELAIDE RIVER Molly's Kakadu roadtrip. Showcases indigenous rock art which I believe is refreshed regularly by local indigenous people. A traditional practice going back thousands of years to keep living culture alive. Jim Jim Falls may disappoint in the later dry season. Expect dry waterfalls and rough unsealed roads to Jim Jim and Twin Falls. Thankyou to Molly Dixon Youtube for enabling video sharing. Always high-quality content by an Australian prepared to go drive and see Australia. Traveldriven UBIRR ROCK ART, KAKADU EASILY ACCESSIBLE BY 2WD KAKADU SIGN KAKADU WILDLIFE ABANDONED IN THE SCRUB DERELICT AIRPLANE AT REST SEALED ROAD TO JABIRU TOWN JABIRU TOWN BAKERY (now closed) YELLOW WATER CRUISE CAMERAS AT THE READY CROC SPOTTING INJURED SALTWATER CROCODILE IN THE SUN SWIMIMING CROCODILE YELLOW WATER JABIRU YELLOW WATER BIRDLIFE SIGNAGE CAHILLS CROSSING CAHILLS CROSSING HIGH TIDE CROCODILE WARNING SIGNAGE KINGA CROCODILE DRIVE CAHILLS CROSSING DRIVING CAHILLS CROSSING PREV AUSTRALIA ICONS NEXT PREV N\ TERRITORY NEXT HOMEPAGE

The Twelve Apostles over time dwindle in number. Due to wind, rain and waves. Recent collapses have occurred. THE TWELVE APOSTLES These are a collection of limestone stacks off the shore of Port Campbell National Park, by the Great Ocean Road in Victoria, Australia. The Twelve Apostles and the extended viewing platform and walkways are one of the most visited places in Australia. There are five sea stacks in close proximity to one another and these may be seen from the official Twelve Apostles viewpoints. An additional sea stack collapsed in July 2005. If not self-driving full day bus tours are available from tour operators based in Melbourne. For a reference, bus tour pricing per adult is from ninety-five Australian dollars as of 2026. TWELVE APOSTLES & VIEWING AREA'S Travelling from Melbourne to The Twelve Apostles via the Princes Highway is about 225 km and takes nearly three hours by car. The most scenic route is through the coastal towns of Lorne and Apollo Bay along the Great Ocean Road, and takes about four hours to drive the 300 km from Melbourne. Seven of the original limestone stacks remain. The official viewpoint has a large bitumen surfaced parking area for cars and buses on the landward side of the Great Ocean Road. The area is extremely busy in peak periods. There are both a Tourist Information building combined with a café onsite. The building has toilets for visitors. There are plans for further expansion. The Twelve Apostles official viewing areas and other sites are completely free to attend as of early 2026. WALKING TRACK TO THE TWELVE APOSTLES The Twelve Apostles walking track is accessed behind the café. This well maintained and surfaced pathway passes underneath the Great Ocean Road which is the only point offering shade from a hot sun or protection from rain along the entire walkway. Viewing lookouts are a fifteen-minute walk further along. One way. A wide and flat pathway leads to the viewing areas. The expanded Saddle Lookout viewing platform built in 2023 at a cost of nine million dollars does not extend over water or cliffs. However, there is slight platform movement felt underfoot when standing towards the seaward end. Scenic helicopter flights are available from the Twelve Apostles in peak periods. These flights are taken from behind the Twelve Apostles vehicle parking areas. WILDLIFE DANGERS OF THE TWELVE APOSTLES Dependant on time of year tourists may be bothered by persistent flies. Also, in the warm summer months and often at peak visitation times, numbers of tiny nipping insects may be encountered. If wearing lightly coloured clothing such as a white t-shirt or polo top these tiny insects can be seen in large numbers appearing as a small dark\green pinhead on clothing. These insects are often referred to as Midges. There are warning signs indicating venomous snakes may be sighted along the Twelve Apostles pathway. Experience suggests people would be unlucky to venture across a snake on the actual walkways. Still the risk is present. The main walkway is very wide so anything crossing can be easily bypassed. Koala, kangaroo and birds of prey are generally never seen in the vicinity of the Twelve Apostles. These animals may be seen at various points along the Great Ocean Road. SADDLE LOOKOUT TWELVE APOSTLES ONE OF TWO WALKWAYS BETWEEN OLD LOOKOUT & NEW SADDLE LOOKOUT SADDLE LOOKOUT TWELVE APOSTLES LOCH ARD GORGE From the Twelve Apostles and driving towards Port Campbell, it's a short distance of a few kilometres to Loch Ard Gorge. Loch Ard Gorge and the short walks offering coastal views, (such as The Razorback) of cliffs and ocean is a very popular tourist spot. Above Loch Ard Gorge a stairway allows visitor access to a small sandy beach surrounded by vertical limestone cliffs on all sides via an opening to the sea. Loch Ard Gorge itself is the 1878 historical site of two shipwreck survivors. NEAR BY TO THE TWELVE APOSTLES AND LOCH ARD GORGE WALK THE RAZORBACK THE BLOWHOLE The Blowhole carpark and walkway is within one hundred metres of the larger Loch Ard Gorge carpark. From The Blowhole parking area, it is an easy five minute walk to the blowhole viewing platform. Even during peak tourist visitation times for the nearby Twelve Apostles, The Blowhole may experience few tourists. During 2025 The Blowhole viewing area was greatly expanded with a cost of more than six million dollars. Enabling visitors to experience up close and in complete safety the force of nature with foaming sea, sea spray and mist forced high into the air accompanied by a thundering roar. The blowhole viewing platform and structure partially encloses this open blowhole that is permanently filled with deep turbulent seawater. The actual blowhole is a circular rock structure perhaps thirty or so metres across with open seawater funnelled underneath large coastal rocky ground overhead. The entrance to the blowhole on the seaward side looks like a massive, sea-flooded cave. Seawater surges through to the large blowhole and retreats. Best viewed when the ocean is stormy or rough. On the rare days when the ocean is calm and there's minimal ocean swell; the impact on one's senses is negligible. The Blowhole enclosure can cater to large visitation numbers and gives protection from rain and sun. THE BLOWHOLE PLATFORM SHAPED LIKE A BREAKING WAVE THE BLOWHOLE & CAVE THE BLOWHOLE & CALM SEAS PORT CAMPBELL The popular small seaside town of Port Campbell is about a ten minute drive from the Twelve Apostles. There is a swimming beach naturally shielded from rough surf, along with a fishing and boating jetty, various types of accommodations, and some retail options. PORT CAMPBELL BEACH GIBSON STEPS A few minutes drive away, almost within viewing distance of the Twelve Apostles, nestled along the picturesque Great Ocean Road on the way to Apollo Bay, you will discover the breathtaking Gibson Steps. These steps, meticulously carved into the rugged cliffside, provide visitors with a unique opportunity to descend to the pristine beach below, offering a close encounter with the raw beauty of the coastline. As you navigate your way down the Gibson Steps from the clifftop carpark, numbering near the hundred, the sheer magnitude of the towering cliffs above and the vast expanse of the Southern Ocean stretching out before you create a truly awe-inspiring experience. It is important to note that while the Gibson Steps offer a remarkable vantage point to witness the power of nature, swimming in the waters here is not recommended. The area is known for its strong rips and rough waters, making it unsafe for swimming. However, the dramatic scenery, the sound of waves crashing on the beach, and the feeling of standing at the intersection of land and sea make the Gibson Steps a must-visit destination for nature enthusiasts and photographers alike. Take a moment to breathe in the salty air, feel the cool ocean breeze on your skin, and marvel at the ancient geological formations that have been shaped by the elements over millions of years. A few of the Twelve Apostles may be viewed from the beach. There is also a longer walking track beginning from the Twelve Apostles. Whether you are a seasoned traveller or a first-time visitor to this stunning region, the Gibson Steps offer a glimpse into the untamed beauty of Australia's southern coast. So, take your time to explore, immerse yourself in the natural wonders that surround you, and create memories that will last a lifetime in this captivating coastal paradise. Attempting the Gibson Steps Mobility issues & gradual improvement Twelve Apostles and Philip Island Tourists often would like to drive Philip Island to Twelve Apostles or vice versa. Underestimating the distance of more than 400 km and six hours with no stops via Melbourne. A more realistic time is at least seven to eight hours. Alternate route of a Port Philip Bay car ferry crossing is perhaps more enjoyable and feasible. Via the Queenscliff\Sorrento car ferry. Traveldriven DRIVE TWELVE APOSTLES - PHILLIP ISLAND ENTER CLICK/TAP TWELVE APOSTLES GOOGLE MAPS SEAROAD FERRIES Queenscliff\Sorrento car ferry TWELVE APOSTLES VIEW TWELVE APOSTLES LOOKOUT VIEW TWELVE APOSTLES TWO LIMESTONE SEA STACKS SADDLE LOOKOUT REMAINING SEA STACKS OF THE TWELVE APOSTLES PREV AUSTRALIA ICONS NEXT HOMEPAGE POST

Bondi Beach Bondi Beach is a famous beach and takes it's name from the surrounding suburb in Sydney, New South Wales. Bondi Beach is about seven km (4 mi) east of Sydney central business district and can be easily visited on public transport. Bondi Beach is one of the most visited tourist sites in Australia throughout twelve months of the year. Bondi Beach is a world-renowned destination that attracts visitors from all corners of the globe. Its iconic crescent shape, golden sands, and crystal-clear waters make it a must-visit spot for tourists seeking sun, surf, and relaxation. The beach is not only popular during the summer months but also sees a steady stream of visitors throughout the entire year. Aside from its natural beauty, Bondi Beach offers a vibrant atmosphere with a bustling promenade lined with trendy cafes, surf shops, and art galleries. Visitors can soak up the sun, swim in the ocean, or try their hand at surfing in the famous waves of Bondi. The beach also hosts various events and festivals, adding to its allure and making it a hub of activity and entertainment. Moreover, Bondi Beach is not just a tourist hotspot but also a cultural melting pot, attracting people from diverse backgrounds and nationalities. This diversity adds to the unique charm of the beach, creating a welcoming and inclusive environment for all who visit. In mid-December of 2025 most people would be aware of the mass shooting that took place on a Jewish Community celebration by one thousand people gathered on Bondi Beach. There were sixteen deaths and 40 injured. It must be said that Bondi Beach is, apart from this one occurrence, a very safe area. General crime rates have decreased over the last ten years. The beach and surrounds can be enjoyed safely and there are regular beach patrols by lifeguards and normal police foot patrols. How to Travel Down Under to Bondi Beach Circular Quay waterfront Sydney CBD is the departure point to Bondi Beach and is under 10 km and approximately 25 minutes travel on the Watsons Bay ferry. Alternatively take a 40 minute bus trip. City2surf This is a 14 kilometre fun run course from Hyde Park, Sydney to Bondi Beach via Kings Cross. Usually held once a year in August. As a spectacle with 80,000 participants running and walking past, the event truly becomes a vibrant display of human spirit and determination. The sheer number of individuals coming together to challenge themselves physically and mentally creates an electrifying atmosphere filled with energy and excitement. Amidst the sea of participants, the novelty entrants stand out with their unique costumes and creative approaches to the race. These individuals not only bring a sense of humour and lightheartedness to the event but also showcase the diverse personalities and interests within the running community. Their presence adds an element of fun and entertainment, captivating onlookers and fellow participants alike. Each novelty entrant tells a story through their attire and demeanor, turning the event into a colorful tapestry of individuality and creativity. Their presence serves as a reminder that running is not just about competition but also about joy, camaraderie, and self-expression. The sight of these amusing novelty entrants further enriches the overall experience, leaving a lasting impression on all those fortunate enough to witness this extraordinary display of human ingenuity and passion. Traveldriven ENTER CLICK/TAP BONDI BEACH GOOGLE MAPS CIRCULAR QUAY GOOGLE MAPS CURRENT BONDI BEACH FIVE DAY FORECAST SYDNEY CBD TO BONDI BEACH GOOGLE MAPS catch a wave BONDI IN WINTER BONDI BEACH SAND BONDI BEACH WALK CITY 2 SURF FUN RUN PREV NSW NEXT PREV AUSTRALIA ICONS NEXT HOMEPAGE

Cairns Gateway to the Great Barrier Reef A tropical city in far North Queensland between the Coral Sea and the Great Dividing Range which extends as far south as Victoria. Cairns has only two seasons. Tropical wet and dry and the city may be affected by the wet season storms which are prone to develop into cyclones. Special Air Service Display Whilst in Cairns the Australian SAS conducted a display for WW2 veterans and the public on the foreshore. A pair of military Sikorsky Blackhawk helicopters flew low level along the coast to the foreshore and staged a mock rescue of a kidnapped person in a limousine. SAS armed with weapons firing blank rounds rappelled to the ground followed by extrication back to the helicopters. Enactment was very well done. Green Island The island is a coral cay twenty-seven km (17 mi) offshore from Cairns, Queensland within the Great Barrier Reef Marine Park. Green Island is made up of and is surrounded by coral reef. Most tourists are day visitors from Cairns. A forty-five-minute ferry ride from Cairns. A luxury resort is the only means of accommodation on the island. The small coral cay island is surrounded by coral reef ideal for snorkelling from the beach. An easy 45-minute rainforest walk encompasses the whole island. There is a swimming beach and also a crocodile park attraction. The only island accommodation is provided by Green Island Resort. On arrival at Green Island jetty, tourists may see the dark silhouettes of reef sharks circling below the boat. Reef sharks are considered fairly harmless if not encroached upon. Atherton Tableland Behind the city of Cairns and fifty km southwest is the Atherton Tableland plateau. The plateau is a part of the Great Dividing Range as previously mentioned that extends as far south as Victoria. There are a few lakes such as Lake Barrine fringed by thin bands of rainforest and some small villages. The plateau itself is not lush with rainforest, being more akin to resembling a farming landscape. Tours are available from Cairns. Traveldriven ENTER CLICK/TAP CAIRNS GOOGLE MAPS GREEN ISLAND GOOGLE MAPS CURRENT CAIRNS FIVE DAY FORECAST source Wix photo An introduction to Cairns and the surrounding area by Terry from the Youtube channel, Let's Go Many thanks to Terry for allowing sharing LAKE BARRINE INLAND FROM CAIRNS PREV BARRIER REEF NEXT PREV QUEENSLAND NEXT HOMEPAGE

MONA TASMANIA Museum of Old and New Art. Visited February 2018 The Museum of Old and New Art (MONA) is an art museum within the Moorilla winery in Hobart, Tasmania. Apparently, it's the largest privately funded museum in the Southern Hemisphere. MONA houses old and modern art collected by David Walsh founder of MONA. Themes of sex and death. The museum is described by Walsh as a "subversive adult Disneyland". MONA was officially opened on 21 January 2011. MONA also hosts arts festivals which showcase public art and live performances. Salamanca Market Saturday morning is the famous Salamanca Market Day in Hobart's CBD. Great to wander around and look at the market stalls. I received a parking ticket on my car. Which I paid. Held since 1945 and starting on Boxing Day in Sydney. The Sydney to Hobart yacht race distance is approximately 630 nautical miles (1,170 km). Yacht crews celebrate on New Year’s Eve at Constitution Dock in Hobart. Traveldriven GOOGLE MAPS ENTER CLICK/TAP HOBART https://www.google.com/maps/place/Hobart+TAS ENTER CLICK/TAP MONA https://www.google.com/maps/place/MONA CURRENT HOBART FIVE DAY WEATHER FORECAST DRIVE FROM HOBART TO MONA TASMANIA Outside MONA Museum WEIRD CAR DESIGNS JUMP ON MY BONES MONA ART MOTIONLESS TATTOO MAN TATTOO ART MONA WRITING ON THE WALL SALAMANCA MARKET PREV PAGE NEXT HOMEPAGE