DRIVING THE OUTBACK Day One Embarking on a long road trip is always thrilling and filled with anticipation of new experiences that await. This particular journey began with the first day of driving from within the State of Victoria and into South Australia, passing through Adelaide and beyond. Road Trip Plan The plan was to stop by interesting wayside sights and to avoid driving on country highways after dark. For safety, try to avoid night driving where the likelihood of wildlife collisions is increased. Night driving is also a risk for drivers with a greater chance of induced driver fatigue. Beginning in the winter month of May the weather was pleasant and cool, with the promise of warm and sunny days in central and northern Australia in the coming days. A viewpoint many should share is to embark on and complete such a road trip in a safe manner. Anticipate great experiences and sights, but the key is that everyone returns home safely even if this means unforeseen delays. Do not compromise safety by rushing to make up for lost time. Unfortunately, a major and unsettling event unfolded on this first day of the road trip. Highway Blocked Road Trip to the Outback The plan was to arrive in the small roadside town of Dublin sixty km north of Adelaide for an overnight stay before nightfall. But due to unfolding circumstances this was unavoidable. Some thirty km before Dublin and up ahead and spread across the highway were emergency vehicles and their flashing lights. Police, fire brigade, ambulance, SES road rescue and a short line of stopped traffic. When joining the stopped vehicles, the scene was one of desperation for emergency personal to attend and evacuate occupants of an on the road multi vehicle accident. Ambulance Helicopter Very shortly an ambulance rescue helicopter arrived and attempted to land in a roadside paddock. Thick clouds of dust kicked up from the rotor blades made it unfeasible to land, so the helicopter lifted up and circled around to land on the road centre about a hundred metres away. All the while traffic was backing up for many km or some miles. This section of straight two-lane freeway was separated from oncoming traffic by a wide centre divide. Television news reporters along with their cameramen were arriving and setting up news camera's mounted on tripods. From a personal perspective nothing could be done but to wait on the road and hope for the best outcome to all people involved. No traffic was allowed through for near on two hours until rescue crews cleared the scene. One road lane was then opened for traffic to pass slowly through. Apparently, there were no fatalities at the scene. Although urgent life support was required on at least one person trapped in a vehicle and then lifted by air ambulance to an Adelaide hospital. Dublin in South Australia The accident delayed arrival time in Dublin until well after dark with no chance to get an idea of the lay of the land, so to speak, in the now gone fading light of day. Only one service station and one hotel remaining open with no meal service at this late hour anywhere in town. A prior decision was enacted upon to park overnight next to an area called Dublin Wayside Stop. The most practical and only choice considering the late hour and the unfamiliar area. On a quirky sidenote, Dublin is home to the Giant Cockroach. This is an Australian 'Big Thing' displayed in a roadside Dublin paddock. The 'Cockroach' was at first shown in central Adelaide's Rundall Mall. The structure is made of scrap metal and was constructed as part of a local protest against a federal and state government proposal to build a large waste dump in the Dublin area. Meant to publicly shame politicians of the time. Presently the structure is situated next to Port Wakefield Road, and passing traffic on the busy road can easily miss it. Reflecting On The Day's Events Happening upon the road accident on the first day of the road trip it was a sobering experience and reminder to all to do the right thing and to pay attention when driving. All need to remember to take regular driving breaks on long road trips. Road accidents not only adversely affect those directly involved but also connected families, emergency personal and witnesses. Respect the road laws and the roads driven upon. Stay safe and enjoy the open road. Early the following day Andamooka was the next destination deep in Outback South Australia via Port Agusta. The drive under six hours from Dublin and a little over five hundred km away. Hopefully there will be no road trip Outback road delays in the days ahead. At least for a while. Traveldriven ENTER DUBLIN GOOGLE MAPS INSTALLING THE DUBLIN GIANT COCKROACH DUBLIN SIGN AT A ROADSIDE REST AREA CALLED 'DUBLIN WAYSIDE STOP' THE REST AREA HAS A SMALL GRASSED PARK, PUBLIC BBQ, TOILETS & SHADED TABLES THE PARK IS LOCATED ON SIXTH STREET & BECAME AN UNOFFICAL OVERNIGHT STAY HIGHWAY ROAD ACCIDENT BEFORE DUBLIN TV NEWS AND REPORTERS AMBULANCE HELICOPTER LANDING ON THE MIDDLE OF THE HIGHWAY PREV AUSTRAIA 2025 NEXT

SCULPTURES ON THE MARSH Derby was the first town established in the Kimberley, marking the start of the initial gold rush. Visitors may be disappointed expecting the Derby foreshore to sparkle with blue ocean. Often on the turn of the tides only large mudflats are seen. The eight sculptures adorning the Derby foreshore and the expansive mudflats serve as a profound tribute to the Warrwa people, who are the traditional custodians of this land. These artistic installations not only enhance the visual landscape of the area but also carry deep cultural significance, reflecting the rich heritage and history of the Warrwa community. The Warrwa People: A Brief Overview The Warrwa people have inhabited the region for thousands of years, developing a deep connection to the land, waterways, and natural resources that surround them. Their cultural practices, stories, and traditions are intricately tied to the environment, which has shaped their way of life. The Warrwa possess a wealth of knowledge regarding the local flora and fauna, and their sustainable practices have ensured the preservation of the land for future generations. The Significance of the Derby Sculptures Each sculpture placed along the foreshore and mudflats is not merely an artistic expression but a narrative that tells the story of the Warrwa people. These works of art are designed to evoke a sense of place and belonging, inviting visitors to reflect on the history and culture of the indigenous community. The materials used in the sculptures often draw inspiration from local resources, that further emphasize the connection between the artwork and the land itself. Traveldriven DERBY GOOGLE MAPS DRIVE - FITZROY CROSSING - DERBY SCULPTURES ON THE MARSH DERBY SIGNAGE MUDCRUB SCULPTURE STORKS SCULPTURE FACE SCULPTURE DERBY JETTY MAIN ROAD INTO DERBY LINED WITH BOAB TREES HISTORIC PRISON BOAB TREE PREV AUSTRALIA 2025 NEXT

Mount Panorama Motor Racing Circuit The circuit has several interesting plaque's dotted around the outside of the track. A few are for former drivers who came to grief at the track. One plaque celebrates the track opening in 1938. The National Motor Racing Museum is located next to the track off of Murray's Corner. Within a short distance from Rydges Motel trackside. The museum has a very interesting collection of both cars and motorbikes. Most if not all, have some time or other raced at Mount Panorama. A rich history of racing going back decades. There is also a well stocked merchandise area. Mustang GT Driving The Mount Panorama track circuit is a two-way public road and it is great fun driving the track in a Mustang GT. Any road going vehicle for that matter. Does not have to be a performance car. I've driven a small normal road going manual car with five gears and with a standard thirteen hundred cc four-cylinder engine on the track and it was great fun. Traveldriven ENTER CLICK/TAP BATHURST GOOGLE MAPS IN REALTIME MOUNT PANORAMA RACING CIRCUIT WIKIPEDIA DRIVING MUSTANG GT BALD HILLS RENAMED MOUNT PANORAMA, 1934 DRIVING MOUNT PANORAMA RACETRACK PUBLIC ROAD BATHURST RYDGES ROOM WALL CAR ART RETIRED V8 DRIVER, ALLAN MOFFAT AT THE NATIONAL MOTOR RACING MUSEUM SCOTT McLAUGHLIN & FORD MUSTANG SUPERCAR MUSTANG SUPERCAR ON TRACK DICK JOHNSON & HITTING THE ROCK BATHURST LAP RECORD AUDI R8 GT3 JENSON BUTTON F1 BATHURST LAP DRIVING BATHURST F1 JENSON BUTTON TICKFORD MUSTANG BATHURST 77 EDITION TICKFORD MUSTANG GT The Tickford Bathurst ’77 Special, is a high performance, limited edition Tickford Mustang GT which pays homage to the Ford Falcon XC Hardtops Allan Moffat and team-mate Colin Bond drove to in a strong 1-2 finish in the 1977 Bathurst 1000. The Tickford Bathurst Special vehicle fitted with a supercharger is quoted as increasing power output to in excess of 727 hp / 542 kw while torque increases to 827 Nm. PREV MUSTANG GT NEXT HOMEPAGE

MUSTANG GT It was Ford Executive John Najjar's idea to name the proposed new car, 'Mustang'. He was a fan of the World War II P-51 Mustang as flown by the USA Airforce. The mustang has been manufactured by Ford since 1964. Accessories A mustang authorised workshop installed the following. LED left and right sequential turn signal lights installation. LED daytime running lights installed. Also LED interior lights and glovebox (not shown). Cold air intake installed. The advantages are to draw in a greater amount of cool air into a car's engine. There are countless Mustang GT driving accessories available. Many are online. Traveldriven MUSTANG GT 6 SPEED MANUAL SEQUENTIAL HAZARD LIGHTS INSTALLED LEFT SEQUENTIAL TURN LIGHTS INSTALLED RIGHT SEQUENTIAL TURN LIGHTS INSTALLED TRI-BAR LIGHTS & LED LIGHTS BRIGHT WHITE LED DAYTIME RUNNING LIGHTS TWO CHROME COIL COVERS FORD RACING CHROME COIL COVER BEFORE COLD AIR INTAKE INSTALLATION STANDARD ENGINE BAY COLD AIR INTAKE ON CAR ROUSH COLD AIR INTAKE AND CHROME FORD COVER MUSTANG GT XFORCE CAT-BACK SYSTEM Stainless steel twin 3" cat-back varex rear mufflers. Xpipe and muffler Butterfly open/close noise control Remote control operated by driver. Expected increase of up to twenty horsepower. XFORCE STAINLESS STEEL MUSTANG XFORCE SYSTEM FITTING FUEL COVER NUMB HANDS & WEAKENED ARMS WASN'T AS EASY AS I THOUGHT MUSTANG GT FUEL COVER PREV MUSTANG GT NEXT HOMEPAGE

BIRDWOOD DOWNS The station is conveniently located just off the Gibb River Road, approximately twenty kilometres from the town of Derby, which serves as a key access point for travellers venturing into the breathtaking landscapes of the Kimberley region. An excellent sealed road runs directly past the main gate entrance, ensuring that visitors can reach the station with ease and comfort, regardless of the type of vehicle they are driving. This well-maintained road is a significant advantage, as it allows for smoother travel and easier access to the station's facilities. As one continues along the Gibb River Road, the bitumen eventually gives way to a 4WD unsealed road, which meanders into the heart of the Kimberley for an impressive 660 kilometres before finally exiting near the town of Wyndham. This section of the road is known for its rough and rugged conditions, presenting a more adventurous challenge for those who choose to explore the unspoiled wilderness of the region. ENTERING BIRDWOOD DOWNS STATION Birdwood Downs remains highly accessible from Derby, making it an ideal destination for both seasoned adventurers and families looking to experience the beauty of the Australian outback without the need for specialised vehicles. The main entrance to Birdwood Downs features a closed swing gate, which is an important aspect of the station's operations. All travellers are required to close the gate behind them upon entry or exit, as Birdwood Downs is a working station where livestock is present. An open gate could easily allow stock to wander off, potentially leading to complications in managing the animals. This emphasis on responsible access reflects the station's commitment to maintaining its operational integrity while welcoming visitors. From the main gate, there is a short drive of about three to four kilometres that leads to the station buildings, where visitors can find accommodation in Savannah huts and a designated camping area. The camping facilities with shady trees provide comfortable spots for caravans and setting up tents and enjoying the natural surroundings. The ambiance is enhanced by the presence of resident wildlife, including wandering peacocks and chooks (chickens), which often pay visits to the campsites, adding a touch of charm and liveliness to the experience. These friendly creatures can be quite entertaining and are a delightful part of the station's unique atmosphere. The old homestead may be inspected but it is really just a shell with an intact roof, open sides and suspect wooden floors. For those in need of assistance or looking to purchase supplies, Birdwood Downs features a staffed office that caters to inquiries and offers a selection of basic items for sale. This includes refreshments such as drinks and snack food, as well as various merchandise that allows visitors to take a piece of their adventure home with them. The office serves as a hub of information, providing insights into the workings of the station. As night falls, a communal fire pit becomes a central gathering place for travellers. This inviting space offers warmth and an atmosphere where fellow adventurers can come together to share stories and experiences from their journeys. The flickering flames create a welcoming environment, encouraging camaraderie among guests as they recount their travel tales and forge new friendships. The communal fire pit not only serves as a source of warmth but also enhances the overall experience of an overnight stay at Birdwood Downs, making it a memorable and enriching part of any visit to this remarkable outback station. Traveldriven DERBY GOOGLE MAPS BIRDWOOD DOWNS STATION WEBSITE DRIVE - DERBY - BIRDWOOD DOWNS STATION OPEN & CLOSE THE MAIN GATE FIRE PIT YARNS RESTING OUTSIDE BIRDWOOD DOWNS OFFICE SAVANNAH HUT & BOAB TREES OLD HOMESTEAD KITCHEN THE GIBB RIVER ROAD PREV AUSTRALIA 2025 NEXT

CROSS THE BORDER INTO WESTERN AUSTRALIA Everything seems to be larger in Western Australia. With over 12,500 km of coastline. It is Australia's largest state and is about one third of the continent. In comparison the state is ten times larger than the United Kingdom. Has the longest stretch of straight railway in the world and also the second longest straight road in the world, called the '90-mile Straight' (146.6 km) in length. This is a section of road along the Eyre Highway. The top one third of the state is in the tropical zone. Western Australia comprises a vast wheatbelt in the lower southern areas of the state. Western Australia contains four of the largest deserts in Australia. These are. Great Sandy Desert. Gibson Desert. Great Victoria Desert. The Tanami Desert. In the northernmost part of the state, all westbound vehicles from the Northern Territory on the Victoria Highway must stop at a fruit quarantine checkpoint located 40 km east of Kununurra inside the Western Australian border. IVANHOE CROSSING A popular water crossing spot for 4wd driver enthusiasts and for fishing. The crossing is about a ten-minute drive outside of Kununurra and water flows year-round over the river crossing. Other alternative routes are available for those not wishing to do a water crossing. The concrete causeway is five hundred and forty metres long (1,772 feet) and five point three metres wide or seventeen feet. The crossing is closed during the wet season. However, and often unseen, are large saltwater crocodiles inhabiting the area. Crocodile attacks have occurred in the vicinity of Ivanhoe Crossing. Traveldriven WESTERN AUSTRALIA QUARANTINE ROADSTOP IN BACKGROUND KUNUNURRA MARKET DAY CROCODILE WARNINGS ON APPROACH TO IVANHOE CROSSING IVANHOE CROSSING ORD RIVER IVANHOE CROSSING FLOODED DRIVING THE DANGEROUS IVANHOE CROSSING CAMP NEXT TO BOAB TREES PREV AUSTRALIA 2025 NEXT

ARLTUNGA BUSH PUB Drive to Arltunga Bush Pub & Eco Retreat. A rewarding road trip of about one hundred and sixty km (100 miles) east of Alice Springs. A 4wd is not a necessity to drive to Arltunga. A reliable SUV or a sedan with normal ground clearage is suitable. The turnoff to Arltunga is about five km short of Ross River Homestead and Resort. The road is sealed to Ross River Resort. However, from the turn off sign to Arltunga the road is 33 km of unsealed road one way. The road is in reasonable condition and the first few km winds between the hills of the East Macdonnal Ranges. Thereafter are a few small sections of road corrugations here and there and with reduced speed these are easy to navigate. The hotel and the large adjoining caravan (no powered sites) and camping park are the only services open to travellers. Clean modern amenities for park guests are to the rear of the hotel. There are ruins from the small settlement of Arltunga Historical Reserve some ten minutes' drive away and a manned ranger station and a museum. Some of the ruins have had restorations. As aforementioned the requirement for a 4wd is not needed. This accessibility makes Arltunga an appealing option for a wider range of travellers, allowing families, solo adventurers, and couples alike to experience its charm without the need for specialised vehicles. THE ROAD TO ARLTUNGA The turnoff to Arltunga is conveniently located about five kilometres before reaching the Ross River Homestead and Resort, a well-known landmark in the region. The road leading to Ross River Resort is sealed and well-maintained, ensuring a smooth drive for those making their way to this picturesque area. However, once you reach the turnoff sign directing you toward Arltunga, the landscape begins to change. The next stretch of road, approximately 33 kilometres long, is unsealed and presents a different driving experience. Despite this, the condition of the road is generally reasonable, and the initial kilometres offer a scenic route that winds gracefully between the rolling hills of the East MacDonnell Ranges. Upon arriving at Arltunga, travellers will find that the Arltunga Bush Pub serves as the central hub for visitors, alongside an adjoining caravan park. It’s important to note that there are no fuel services available in the immediate vicinity, so it's advisable to ensure your vehicle is adequately fuelled before making the trip. Just a short ten-minute drive from the pub lies the Arltunga Historical Reserve, where remnants of the small settlement can be explored. This area features several ruins that have undergone restoration efforts, making them well worth a visit for anyone interested in the rich history of the region. Additionally, there is a manned ranger station tucked away in the bush for unforeseen difficulties. Binns Track runs along in front of the hotel and continues onto Tennant Creek via unsealed roads of over 2,000 km. FRIENDLY ATMOSPHERE The hosts of the Arltunga Bush Pub, Belinda and Brad, are genuine and down-to-earth individuals who embody the spirit of Australian hospitality. They are always willing to assist with any inquiries, ensuring that every guest feels welcomed and comfortable during their stay. Their commitment to providing a homey atmosphere makes the pub a standout destination, and they are truly a credit to the hospitality scene in the Northern Territory, where warmth and friendliness are paramount. What sets the Arltunga Bush Pub apart is the painstaking effort that Belinda and Brad have invested in its construction and design. The establishment has been built in a manner that is quintessentially Australian, blending seamlessly into the surrounding bushland as though it has been a part of the landscape for ages. Inside, visitors will find old saddles and sturdy bush timber, creating an authentic outback ambiance that is both rustic and inviting. Unlike many tourist-oriented establishments, there is no excessive clutter or gaudy decorations hanging from the ceilings, which can often detract from the genuine experience of the outback. Moreover, the pub does not employ casual staff who lack local knowledge; instead, Belinda and Brad ensure that their team is well-informed and connected to the community. While the menu may offer a limited selection, the meals are hearty and satisfying, complemented by a cold drink to quench your thirst after a day of exploration. This is truly a fair dinkum outback pub—exactly how it should be. Although, the hotel has been painstakingly built by Belinda and Brad it has been done in a very Australian way. It bears repeating a limited choice, but hearty meal and cold drink await outback travellers inside. Just a fair dinkum outback pub. There-in lays the appeal. No more no less. Traveldriven DRIVE ALICE SPRINGS TO ARLTUNGA ARLTUNGA BUSH PUB ARLTUNGA HOTEL INSIDE THE ARLTUNGA PUB OUT THE BACK ARLTUNGA PUB UNDER THE FRONT VERANDAH ARLTUNGA PUB THE OLD POLICE STATION A SECTION OF OLD ARLTUNGA TOWN OLD TOWN BUILDINGS PREV AUSTRALIA 2025 NEXT

CURRENT FIVE-DAY FORECAST MELBOURNE For residents living in Melbourne or tourists visiting Victoria, consider a day trip or a weekend road trip in Victoria. You can travel by car or use public transport. However, exploring outer regional areas might be more enjoyable by car over a weekend to fully appreciate what the region has to offer. Go to Victoria Day Trips Posts for a few places of interest. Observation Deck Eureka Tower In the city of Melbourne, Victoria. Open daily from noon. Enjoy breathtaking views from the Melbourne Skydeck, situated in the Eureka Tower off Riverside Quay, Southbank in Melbourne's CBD. The Skydeck is located on the eighty-eighth floor, 285 meters (935 feet) above the city streets below. Entry fees start from $33 and can be paid within the ground floor foyer. As of 2025, the Skydeck is recognised as the highest public observation deck in the Southern Hemisphere. Eureka Tower has ninety-two floors, including one underground. A dedicated lift takes visitors directly to the eighty-eighth floor without any stops, ensuring a swift and uninterrupted journey to one of the highest points in the building. This lift is designed specifically for the convenience of tourists, allowing them to bypass the lower floors entirely and arrive at their destination quickly. The direct access not only enhances the overall experience but also minimizes the time spent in transit, which is particularly advantageous for those who may be eager to reach the breathtaking views that await them on the eighty-eighth floor. However, it is worth noting that during the ascent or descent, passengers may experience slight lift wobbles. These gentle movements can be attributed to the lift's high-speed operation and the engineering design that accommodates such rapid travel. While some may find these slight fluctuations a cause for concern, they are generally considered a normal aspect of modern lift systems, particularly in skyscrapers where elevators must navigate significant vertical distances. The sensation of movement can even add an element of excitement to the ride, as visitors anticipate the stunning vistas that will soon unfold before them. The lift journey to the Skydeck takes about forty seconds and the Skydeck occupies the entire eighty-eighth floor. Almost all views are behind large glass windows with expansive views in all directions over Melbourne. A café with a good choice of snacks and drinks also operates within the Skydeck. The Skydeck is a popular spot for tourists and school groups to view Melbourne landmarks from above. The Terrace Once at the Skydeck people will see there is an outdoor area called 'The Terrace', with free access to view a wind in your hair experience and take in the sounds of the surrounding city. The views are through a sturdy all surrounding steel and wire mesh safety barrier. The Edge For an additional entrance fee, and upon presentation of a valid ticket to the attendant of The Edge, members of the public may have access to an exhilarating attraction that promises an unforgettable experience for those daring enough to step outside their comfort zones. This unique feature is designed as a fully enclosed clear glass cube embedded in a thin steel frame that extends an impressive three metres out from the side of the observation deck, providing visitors with a breathtaking view that creates the illusion of standing in thin air. The design of The Edge is not only visually stunning but also meticulously engineered to ensure safety while offering an adrenaline-pumping adventure. As you step into The Edge, you are soon greeted by an unparalleled panoramic view of the surrounding landscape, which can be both awe-inspiring and slightly intimidating. The transparent walls of the cube allow for a 360-degree perspective, immersing you in the sights and sounds of the city below. However, it is essential to note that this attraction is not for everyone; individuals who are fearful of heights or those with pre-existing cardiovascular conditions may find the experience overwhelming and should consider this before purchasing their tickets. The Edge not only offers a thrilling adventure but also serves as a testament to modern architectural innovation. The design incorporates advanced safety features and materials that withstand the elements while providing an unobstructed view. Visitors are often encouraged to capture their experiences through photographs, creating lasting memories of their time spent suspended in the air. For those seeking an adrenaline rush or a unique perspective of the world, The Edge represents an extraordinary opportunity to confront fears and embrace the thrill of being high above the ground. Traveldriven MELBOURNE CRICKET GROUND MCG EUREKA TOWER & YARRA RIVER SAINT PAUL'S CATHEDRAL, FLINDERS STREET STATION & FEDERATION SQUARE WEST GATE BRIDGE THE TERRACE & ENTRY DOORS CITY VIEW & YARRA RIVER GOVERMENT HOUSE PREV VICTORIA NEXT

WHATEVER IT TAKES KEEP GOING CIDP & RECOVERY? There is a famous expression in English: ' When the going gets tough, the tough get going' –meaning when the situation becomes difficult, the strong will work harder to meet the challenge. Sometimes, when we are in a tough situation, an inspirational quote or saying can help us calm down and focus on what we need to do. Quote On Life "Whether you think you can or you think you can't, you're right". Henry Ford (1863-1947) Search motorsport quote on this blog from well-known Australian motorsport drivers. All could be applied to life in general. 'It's not rare if it happens to you'. Traveldriven quote WHAT IS CHRONIC INFLAMMATORY DEMYELINATING POLYNEUROPATHY UNDERSTANDING CHRONIC INFLAMMATORY DEMYELINATING POLNEUROPATHY SIGNS OF AND EXPLANATION OF CHRONIC INFLAMMATORY DEMYELINATING POLYNEUROPATHY OUR PAINTBALL GROUP SNIPERS DEN MELBOURNE I second from left as a lefthanded paintball shooter THE OPPONENT'S CHINESE SOLDIERS? First and only paintball experience. Great day out by all on a hot Melbourne day. We received many hits and returned many back. Eight weeks before CIDP diagnosis. AFTER HOSPITAL DISCHARGE & HOME WITH CIDP My CIDP journey is written below. Living with a rare serious condition before, during and the aftermath of the COVID-19 pandemic. Hopefully the worst is over with CIDP and will not return. Allowing some CIDP recovery to take place. Below is primarily published with a view to help other's recently GBS/CIDP diagnosed. Written for myself as a self-improvement reference. How CIDP changed life in general and for those interested in rare conditions from a non-medical perspective. A personal viewpoint of first hand CIDP experience. 5,210 words 20 minute read Chronic Inflammatory Demyelinating Polyneuropathy An immune system disorder. Attacks the myelin sheath of peripheral nerves. In my opinion CIDP brings much uncertainty. Saintly patience is required for nerve self-repair. If any repair does occur, it often will take years. There are many unique symptoms of CIDP damaged nerves. CIDP has many pathways. Following is one individual's perspective. Life with CIDP. Hi, my name is Wayne. I live in a small regional Victorian city. It is January of 2019 no health issues and 59 years of age. I was working as a food industry employee on the factory floor involving physical work and long periods of standing. Although physically demanding work, I had no problem carrying out work duties. Thought I should get a doctor's check-up. Something didn't feel right. Affecting Daily Life I booked a GP appointment. I explained I was experiencing numb toes and tingle sensations. The gist of the consultation was to come back if things did not improve in three or four weeks. Shortly after, a weekend day drive to a coastal tourist town left me wondering how safe my driving was. I own two sedans. One manual and one automatic. Driving my automatic transmission car in the busy main street I stopped in traffic. A car behind and a car in front. I depressed my right foot on the brake unaware the side of my foot was still on the accelerator pedal. Smelling tyre smoke and engine revving I turned the ignition off. I did not have enough feeling in my feet to feel the pedals. An accident avoided and a cautious drive home. Acupuncture? It was suggested acupuncture may be beneficial. Unsure of driving ability. I travelled by train to Melbourne. Sceptically, I agreed on a two-hour consultation. The Chinese acupuncturist inserted needles in feet and upon withdrawal all were bent at right angles. The acupuncturist commented the normal needle curvature was severely bent out of shape on all needles. Evidence of extremely taunt tendons. He recommended daily use of a foot spa diluted with whisky and two more sessions. An incredulous recommendation in my opinion. I returned home unconvinced acupuncture made any difference. I declined the two further expensive sessions. In an Immobile State and Past Trauma I was struggling to lift my feet for no apparent reason. All my fingers tingled and toes felt numb. Accessing my car, I stumbled backwards and fell on my lawn. I overturned a coffee mug at a local café with family and friends. Weak hand grip coordination. Within two weeks I returned to my local GP for a second appointment. The doctor referred me to a Melbourne neurologist a few hours' drive away. The first appointment was ten days off in Ballarat. I spent the time housebound and unable to work. Leg strength and balance are getting worse. No feeling in feet. Weak gait. Six attempts to park the automatic car in the garage behind the roller door. Unable to drive. No public transport available. I live alone as my wife of twenty-three years passed away with breast cancer two years before. Connie, my wife, would have been whole heartily supportive one hundred percent, as I of her. I remembered getting the all clear result of a routine health scan over eighteen months prior from a prominent doctor. Who happened to be my wife's surgeon. I was sitting in the doctor's clinic unable to speak when asked questions. Maybe ten minutes or more. Memories of the cancer clinical setting all around me suddenly and unexpectedly affected my speech. The surgeon walked me to reception. This was a few months preceding my solo eight week road trip around much of Australia in a sedan. For me, long drives addressed trauma. Waiting for Medical Help Now, nearly two years later I needed to see a specialist. What is it? At least I knew I didn't have cancer. I have no home support. After several days I could barely walk around inside my home. I telephoned the Melbourne neurologist's reception twice and tried to bring the appointment date forward. I offered to get myself to the Melbourne clinic as my condition was deteriorating. My walking is becoming weaker. Reception replied the original appointment was the earliest date and all earlier times were fully booked. I asked if I could speak to the neurologist. 'No, he's with a patient'. Ok, so I waited at home with a stoic attitude thinking everything will be ok after a week or two of rest. My respiratory condition felt normal during this time. A further five days passed housebound and I was then driven to my neurologist appointment. I attended a medical consulting clinic used by visiting Melbourne specialists. Located in the large regional city of Ballarat. Upon seeing myself struggling to walk and assessing absent nerve reflexes the neurologist immediately admitted me to St Vincent's Hospital Melbourne. He telephoned the hospital on the spot. Luckily, I carried a small overnight case. Allowed no time to return home to pack a bag. My driver kindly agreed to drive directly to the Melbourne hospital. I distinctly remember the neurologist telling me I think you have GBS or CIDP. Let's hope not CIDP. Of course, I was clueless of these remarks. I, like many, not realising the serious health implications of these unheard of conditions. In both Guillain-Barré Syndrome and Chronic Inflammatory Demyelinating Polyneuropathy one's own healthy immune system turns rogue and attacks the peripheral nerves. Classified as autoimmune disorders. GBS is seen as an acute disorder occurring once only and is of a relatively short duration. CIDP is the chronic counterpart of GBS. Unknown Cause CIDP origins are idiopathic, (unknown). Although, one United States research paper documented a small cluster of GBS/CIDP cases among workers in a piggery attributed to Campylobacter Jejuni sometimes found in slaughtered pig, sheep or chicken. I worked in the food industry for years with daily exposure to dried blood from thousands of freshly slaughtered sheep. The provided cotton hood head/face and body protective clothing ineffective as a 100% barrier against dried blood contact. Medical publications such as National Library of Medicine, Journal of Neuroimmunology etc, cite up to 40% of those diagnosed with GBS/CIDP showed a viral infection with Campylobacter in the few weeks prior to symptoms appearing as the result of the onset of nerve demyelination. No Campylobacter was found in the many blood tests I had in the hospital. I don't recall having common symptoms of Campylobacter. The short answer is I never had a Campylobacter infection. Although I can't state this with one hundred percent certainty. Medical literature cites livestock workers with a positive viral infection to Campylobacter Jejuni have a one in a one thousand chance of acquiring GBS or CIDP. For the general population there is a one in a one hundred thousand chance of a GBS/CIDP diagnosis with no exposure to livestock. HOSPITALISATION My first hospital admission as a patient in over forty years. I began intravenous immunoglobulin (IVIG) infusion of Privigen that night, Friday. Each infusion takes about three to four hours. Administered through a catheter needle inserted into a vein in the arm to overwhelm the immune system's own antibodies attacking the nerves. The third consecutive day of IVIG had a late finish of 3am. The end of the loading dose of IVIG treatment. Within days I had a lumbar puncture (spinal tap). Symptoms, Not Good A nerve conduction study showed total and partial blockage on major leg nerves. Symmetrical left and right of the body. Multiple blood tests and other tests were carried out. One doctor told me a blood sample was sent to Western Australia for analysis in a laboratory. Apparently testing for this one particular pathogen could only be undertaken in Perth. Why? I don't know! The result returned negative. Good. All tests showed no evidence of recent viral or bacterial infections. Nothing. Disabled and Bleak Outlook All the staff treated me well. I could not walk and was dependent on a wheelchair. A walking frame provided some standing support for very limited room use. Complete loss of balance. Numb from backside and legs down. No leg reflexes. Paralysis of all four limbs. Acute abdominal tightness caused moderate breathing constriction. Tested twice daily for breathing capacity in anticipation I needed artificial breathing assistance via a ventilator. Daily stomach injections to prevent blood clots because of immobility. I have always been a non-smoker. I took solace in this. Additional complications I could do without. I could hold light weight items such as a spoon, fork and knife but all extremely hard to use. Unable to open served food or drink lids. Unable to write or use a cell phone, buttons, zippers, tie laces or hold a small cup of coffee in one hand. Initially, a few instances where vision was blurry but became quickly focused again. There was mild shortness of breath due to tightness around the torso. Facial movements unaffected. No Further Deterioration Doctor's asked if I could wiggle my toes up and down. I did to our surprise. My condition did not deteriorate any further after the first few days while in hospital. By week's end doctors assessed my condition as somewhat stable. With mutual agreement my public hospital bed was moved to other wards five times during my lengthy hospitalisation. Even down a floor to another ward. All wards at full capacity. I was stable and under supervision. I was later told the first course of IVIG probably stalled the progression of CIDP. I understood progression meant reliance on a ventilator and total immobility before likely incremental improvement. Specialist Consensus and First Symptom? I agreed to be wheeled in my wheelchair to the once every Friday specialist meeting. On an overhead projector my condition and possible diagnosis was discussed in front of twenty or so experts including the department head Professor of Neurology. Doctor's posed questions with pen and notebook in hand. I answered what I knew. Specialists later diagnosed CIDP and not GBS as my symptoms were at least eight weeks. A little more than two months before diagnosis I paid for a family paintball day in Melbourne. My legs gave way underneath me on short sprints. No pain. Just momentarily weak legs. I thought this odd and amusing at the time. I attributed this to overworking myself. In hindsight, the first symptom of CIDP that I can recall. Normally I don't jog. St Vincent's Hospital Melbourne had no other patients with GBS or CIDP. Both are very rare conditions. Apparently, there is a one in one hundred thousand of a diagnosis of CIDP. Long Term Hospitalisation Concerns The isolation of a big city hospital away from familiar faces is very confronting. Placed in the Neurology Ward with many seriously ill people. An adjacent patient had suffered a mild stroke and was up and about unassisted walking, talking and using all four limbs very well within a few days. A lucky man. Not so for myself, diagnosed with a crippling condition. Prognosis unknown. During most of my hospital stay my only regular visitor was a weekly visit from a volunteer inter-church counsellor. These visits were really helpful and appreciated. A family member paid me a day's visit. I was pushed around the large hospital city block in my wheelchair. Along busy Victoria Parade avoiding able-bodied pedestrians. It can't be understated how great it felt to feel the fresh air and warm sun on your face after one month inside. Myself wondering if this is permanent now? Wheelchair dependent . Medical staff were not telling anything. Not wanting to give false hope. Autonomic nervous system dysfunction can occur. In my case, hints of autonomic system involvement appeared but thankfully no progression occurred. These serious symptoms range from incapacity to breathe, double vision and sight deterioration with optic nerve damage, bowel & bladder dysfunction, total loss of ambulatory function and cardiac irregularities. All due to nerve and muscle interactions within the body. Symptoms as mentioned may or may not occur. Hence, why my five week hospitalisation and medical specialist uncertainty. INPATIENT REHABILITATION I spent five weeks in this major Melbourne hospital followed by nearly a week of inpatient rehabilitation. In a facility even further from home in the eastern suburbs of Melbourne. I used a walker now. I watched through the window from my hospital bed a pair of hot air balloons very low above buildings. Nightly tv news said they made an emergency landing nearby. I thought at least these people had access to the outdoors and were not confined to a hospital. Transferred again. For a period of almost two weeks to a large regional rehabilitation facility in Ballarat. Transferred between by ambulance. I sat next to the driver for the two hour trip. Fellow Patients There was another patient in the back of the ambulance for the entire drive. A sedated female stroke patient, by appearances not yet at retirement age, nearing end of life. We drove her to the same palliative care facility where my wife spent her last weeks. The palliative building was adjoined to the rehabilitation complex. It was a solemn two hour ride for me. Walker and Red tape Admitted to rehab. My own room. Walker handles wrapped with red tape. Red tape is replaced with green tape once walking is assessed as safe unsupervised. Mixed in with recovering stroke and cardiology patients. I spent regular physio sessions among patients clumsily sliding Domino pieces around table tops. Myself much more advanced than those with stroke recovery. Creatively and carefully building multi levels of Domino's. Of course no one had heard of Chronic Inflammatory Demyelinating Polyneuropathy. Both my feet are equally affected by CIDP induced peripheral neuropathy. Can I eventually learn to walk normally unaided? CIDP uncertainty plays mind games with you. Twice a day early morning and mid evening l decided to attempt a circuit walk around the ward corridors and nursing station. Outside of structured daily physiotherapy sessions. Against the red tape supervision rules. I felt competent enough as long as I used a walker. I am not normally one to go against guidelines. I wanted to be proactive. I decided I would pay heed to the advice if questioned. Pushing my walker my hope was to progress from red to green tape. My aim was to complete ten laps. All exhausting work. Rolling past other inpatient rooms. People such as Mark, who was paraplegic from a diving accident and found it hard to face the day. Blankets pulled over his head. Thinking I'm not wheelchair dependent anymore as I was nearly two months before and now able to use a walker these last seven days. I self-recalled a road trip to Townsville Queensland. How fortunate Max the pilot and I were from the Tiger Moth joy flight forced landing on the Mackay Ring Road in 2018 with a broken crankshaft sustaining no injuries. Especially spinal injuries like Mark. Thinking of the inhouse gym physio sessions both Mark and I attended. He is in his wheelchair. Apparently, a potential fate I have now avoided twice within the space of twelve months. I rolled my walker past the longest inpatient resident. Leslie, a double amputee. Foot and one arm past the elbow. He wanted the rehab. facility to become his permanent home. I rolled past the recreation area with its chairs, television and books. Unknown Outlook on Recovery Towards the end of my stay two female physiotherapy staff were to take me to an adjoining building with a two storey stairwell. Attempting the stairwell was very exhausting. Supported all the while taking small steps and resting legs. Could have taken a cut lunch with the time it took. Still, it was something achieved. Physiotherapy staff were faultless guiding and physically supporting me on how to walk. Dealt with my strong safety concerns and poor expectations. Self-balance was still a major issue. Once every four weeks IVIG infusion of Privigen. The initial loading dosage was calculated by patient weight. Future dosage unchanged even with weight variability. Taken daily, an Azathioprine (immunosuppressant) tablet. Given to counter progression of CIDP. Green Tape Approval Doctor's unable to provide a prognosis. Using my walker in rehab. Now authorised with green tape I asked a visiting neurologist if this is true. One third of CIDP patients are wheelchair bound for life. One third recover to near their former self and one third are somewhere in between. CIDP by definition is often characterised by a relapsing–remitting course. Severity and duration unknown. The neurologist agreed with this and replied I wasn't in a wheelchair anymore. I also now thought at least I could walk with a walking frame and green tape. Will this be the new normal? Walking stick wound with red or green tape is still far beyond my capability. Unease On Ability for Future Home Self Care In an adjacent ward a recovering stroke patient was due to be discharged in the next few days and suffered a lengthy seizure becoming unconscious. Drugs were administered to regain consciousness. Not exactly instilling in me the confidence of the rehab. centre’s assessment on my readiness for my imminent discharge. Wondering how I will cope by myself at home? No at home Care Plan was planned or established by the medical profession. My thoughts were that future welfare dependency was inevitable. One of the facilities visitors was the minister of my local church. A coincidence chance meeting. With myself using a walking frame together we attended the adjoining palliative care facility to give thanks again to staff from two years ago. But the staff had moved on. The Minister's comforting presence and support was greatly appreciated. I was visited only once in Ballarat Rehab. Day Pass Out Refused A long time friend agreed to drive me home and back for a day on an upcoming weekend. Return drive of three hours. However, on presentation at the main entry reception the facility doctor-in-charge refused me a pass out. Judged too high a risk to health due to the current summer heat wave conditions. Disappointment prevailing. I apologised to my driver for the wasted long drive. I would have liked a short break from the hospital environment. Now unable due to doctor's orders. Approaching two months of unbroken hospital stays and still cannot return home. Within another week I was discharged. HOSPITAL REHABILITATION DISCHARGE I required home help with housework and to be driven about. I was physically incapable of driving. A home help service was made available usually once per week for the following several months and was provided by local government providers. Following rehabilitation discharge I needed to seek out and meet eligibility requirements for this health service for a monthly fee. Also, long term podiatry services for a nominal fee. I used a combination of a walking frame and a stick. My duration of care was uncertain. Occasionally I attempted a walking stick only. Home Self Care Struggle It was a big struggle to walk. Collect mail from my front yard letterbox and feed the cat and dog in the backyard in the initial four months. There was great difficulty twisting household taps and dressing daily. I enrolled in physiotherapy and hydrotherapy. Unable to write in a legible manner. I signed an X on the paperwork. Walking was severely restricted by weakened legs, peripheral neuropathy of both hands and feet, (paraesthesia) and CIDP induced severe tightness around the torso. Symmetrical left and right of the torso. Tightness may be described as banding, tapering to the spine. My local hospital provided monthly IVIG infusions in their Oncology centre. The same wards, the same familiar nursing staff and the same infusion method my wife received for cancer treatment. The same familiar medical equipment. Two years on. Here I am. Surrounded by everything I wanted to forget. In my mind cancer kills and CIDP cripples. Me, a distressed witness of prior circumstance. I was back in the same environment and building. I reminded myself it's all for the best and left it at that. Accepting the hard physical and mental health challenges. I was struggling with poor ambulatory function longer than seven months post diagnosis. For example, the assistance of three people was required to descend a vehicle dealership's long flight of stairs. Assistance was required from the front, back, side and guidance of the guard rail with frequent stops. As I lived alone and struggled daily with CIDP I considered applying for Meals On Wheels. I gathered I did not fit the criteria for the service. On occasion a family friend, who was a prominent member of a local church, delivered a cooked meal. I greatly appreciated it. More than nine months passed and I was in-effect housebound and isolated. The latter half of 2019 my mobility had improved and I was not entirely housebound anymore. Medical approval was given to drive a private motor vehicle subject to future review. On the eve of the Covid-19 lockdowns of a five km radius from home. Bitter sweet timing as I have always been a driving enthusiast. Thankfully, driving a private vehicle was not permanently revoked such as all commercial and volunteer driving was. Hoping for some relief of long term improvement Normal touch sensation had long since returned. For many months everything was like coarse sandpaper to the touch. Even to pat the dog and cat. Initially the first twelve months of abnormal unpleasant foot sensations of crawling ants on skin and sometimes legs to doubt one's sanity. I confronted significant immobility struggles and home isolation in the twelve months preceding the COVID-19 pandemic. As I was immunocompromised COVID-19 vaccines were required. Four injections were completed. I was aware that in the most dire of Covid-19 hospital patients, a hyperactivated immune system triggers a cytokine storm in the lungs, a life-threatening condition. Twelve months of weekly outpatient physiotherapy sessions were COVID-19 interrupted and eventually stopped all together. I needed to think outside the box to address isolation, boredom and limited mobility during COVID-19 and frequent lockdowns. I purchased Virtual Reality hardware and software for the home desktop pc. I watched 3d movies in a virtual reality cinema. VR offered a very real comforting feeling of freedom, experiences and escape from over twelve months of CIDP immobility. I also continued developing my own road trips website. Self-taught through trial and error. I navigated isolation and restriction challenges of COVID-19 without infection. I was made aware of a free twelve month government counselling program made available for people to boost their mental health during Covid-19. Although I was fine. I thought this may be a good program for me to view as insurance. In the event I suffered a total CIDP relapse. I used the service as an outlet and to maintain a positive attitude. Although beneficial, I viewed it as irrelevant unless I had a total CIDP relapse back to square one. I viewed the program as my insurance backup. A positive strategy if the worst occurred again. CIDP LONG TERM FIVE YEARS The National Library of Medicine (USA) has available scientific literature online of a small study detailing the long term prognosis of chronic inflammatory demyelinating polyneuropathy. A five year follow up of thirty-eight cases with no comorbidities. Source is from, Journal of Neurology, Neurosurgery & Psychiatry. An informative paper the layperson can largely understand. Following is a five year summary after my CIDP diagnosis and subsequent IVIG infusions. The ongoing purpose of infusions is to maintain patient ambulation while encouraging a healthy autoimmune response to the peripheral nervous system. Since late of 2021 no mobility aids or home assists . I have no comorbidities with CIDP. Chronic peripheral neuropathy is commonly associated with diabetes. I am not diabetic nor pre-diabetic. No muscle atrophy. Although persistent neuropathic pain was experienced for three years in the torso and feet. No nerve pain medications were offered. Tempting to ask for, but not wanting prescription addiction. Nerve pain abated somewhat after four years. No separate health issues. Three Years Living With CIDP During the initial three years. The need to rest extremely fatigued legs and arms whilst attending appointments, in supermarket queues and public places. Three years of short daily showering and brief house tasks for the same reasons. Effectively, early labour force retirement. For example, a long three years from hospitalisation for a first attempt at extended car driving. Also, the ability to be able to hand wash a car uninterrupted by multiple rest breaks for fatigued legs and arms. Mow a small lawn without resting legs. Walking slowly for more than thirty minutes. I've always enjoyed driving. Good to not feel significant under the ribcage wincing from torso tightness, (abdominal nerves inflammation?) over every minor highway jolt and bump. Three plus years to get to near normality. Will this be maintained! Or will I experience a relapse? All these personal milestones and more were not guaranteed. An estimate on time taken to gain improvements, if any, cannot be obtained from the medical profession. It's the uncertainty nature of CIDP. My three year disability Parking Permit renewal was twice refused and not renewed. Even with General Practitioner doctor input and submission. Probably because of the eligibility criteria assessment to use walking aids within a one hundred metre distance. Leg fatigue was still a major issue even though aids were no longer used. My believeth was that the Permit would be deemed unnecessary in twelve months' time anyway. Four Years Living With CIDP After four years of incremental improvement and at last, reducing nerve discomfort. Improvement also shown around the torso. In my own mind, a relapse and a wheelchair scenario was not expected again. I experienced throughout this time the ever present, unpleasant feelings of large, rounded stones/balls under both feet. Symptoms associated with CIDP neuropathy. CIDP impacts nerve myelin, nerve axons and causes inflammation of nerve roots. If nerves are too damaged, limited or no long term healing is possible for the unfortunate. Medical papers cite nerve regeneration is 1mm per day or about one inch per month with no active disease. Neurologist Appointments and Tests Undertaken not more than once every twelve months by a neurologist a nerve conduction study revealed improvements in lower limb nerve conduction and functionality. Had previously been assumed a plateau was attained. This was incorrect. Small improvements greater than fifty months from diagnosis were still achievable. Although nerve conduction is outside of acceptable parameters. Shows further improvement is possible even after fifty months. By way of an explanation. A nerve conduction study involves the combination of two electrodes placed on the skin of an arm or leg above a length of a nerve and electrical conduction is measured between the electrodes. Multiple nerves may be tested. The person quite often experiences a small amount of discomfort when the brief electrical shocks are applied. The shocks are low voltage and so are harmless to anyone. A four year MRI scan follow up was completed of the spine and cranial cavity. Dye injected. Not less than a one hour process. An investigation into chronic torso tightness since the initial CIDP diagnosis four years previously. A scan for demyelinating disease and lesions of the central nervous system. The conclusion was of no demyelination or lesions identified of the central nervous system. Normal scan result. No nerve entrapment or Multiple Sclerosis (MS) pathology. No additional neurological problems. CIDP is a peripheral nervous system condition. There is no spinal or brain involvement in CIDP. Now I am experiencing almost pre-CIDP ambulatory and strength function, except lower limbs. Walking a moderate distance is ok. Sixty minutes. Normal pace. No walking aids are required. This is a significant bonus. Five Years Living With CIDP On approaching five years of CIDP. Residual symptoms include: moderate symmetrical and ceaseless tingling felt underneath both feet. Mild tingling in the hands. Mild torso tightness and mild symmetrical weakness in legs. Normal touch sensitivity in hands and feet has long returned. IVIG infusion is still ongoing and is now changed to Privigen infusion of 40g completed on one day, six weekly up to a four hour duration. Instead of over two days every six weeks. The purpose is to halve hospital attendance to one day and to avoid possible or probable multiple failed attempts of catheter (I.V. needle) insertion into a vein due to poor venous access. The merits of self-administered s ubcutaneous immunoglobulin (SCIg) infusion may be an option for future consideration if infusion attempts are increasingly problematic. Time to underscore CIDP. Obviously, no progression or relapse. Discontinuation of IVIG is unlikely? In my opinion, it is a medical specialist decision. Beyond Five Years I regard myself as a driving enthusiast. I enjoy travelling within Australia. During May 2024 I completed a nine day tour as a passenger in a SUV to Outback Queensland. A return distance of 3,400 km Adelaide to Adelaide, South Australia. I drove myself 500 km to Adelaide to begin the tour. Return to home base was driven in one day. On no part of the remote trip special allowances were made because of ongoing CIDP symptoms. Nor was personal enjoyment diminished considering much travel was on unsealed and sometimes rough roads. All tour optional excursions and activities were completed as normal. Although significant improvement takes a very long time and gains are uncertain. With the passage of time symptoms may eventually fade and not permanently worsen. I hope this is encouragement to those newly diagnosed. Returning to living near a normal life is possible with, Chronic Inflammatory Demyelination Polyneuropathy. Living with CIDP & IVIG It is well past the five year initial diagnosis of CIDP and there is still incremental improvement felt. Tingling nerves are always present still. Living long term with CIDP and to divert attention away from CIDP symptoms, there is merit in listening to music. This provides home based enjoyment. Social interaction is important for health as is to enjoy any family time. Attending live events helps ward off feelings of isolation. Join a light physical activity group. For example, Tai Chi? Join a neuropathy focus group. If only to listen to others and chat. People familiar with CIDP give perspective and may offer valuable first-hand information on rare conditions such as CIDP or GBS. My IVIG infusion dosage has never been greater than 40g. The first few years were infused four weekly then six weekly. I have not experienced any significant decreased mobility between IVIG infusions as many do. I have never experienced an adverse reaction to the infusion flow rate of IVIG. Reaction after-effects may include headaches and nausea. In my opinion it is best to seek, evaluate and trust answers from specialists and hope for the best. CIDP is not predisposed by any prior physical, mental health or lifestyle attributes. It is not hereditary or contagious. It's a rare condition. General Practitioners rarely see it, if at all. CONCLUSION All of the above gives an insight into CIDP. At least as applicable to one individual's experience. Hopefully all the aforementioned addresses a lack of awareness and knowledge concerning Chronic Inflammatory Demyelinating Polyneuropathy. All things considered; quality of life is good. Being able to enjoy once again the one-handed cup of coffee. The freedom of walking unassisted in the outdoor fresh air. Driving the countryside. The simple things. A CIDP diagnosis and pathway is full of uncertainty for all. Don't dwell on anything that may never happen or recur. Be honest and patient with yourself. Don't say why me! CIDP is a treatable condition. Despite all the aforementioned I still consider myself fortunate. I don't seek sympathy. In my experience empathy for rare hidden conditions is improbable outside of immediate family. CIDP awareness would be a start. We don't get a choice of autoimmune or neurological disorders. These disorders cannot be prevented by lifestyle choices. It is our choice how we choose to respond and live our lives. There is a Latin phrase. Amor Fati accept one's fate, find the elusive positives and move on. Amor Fati Wayne Comprehensive data of immunoglobulin use in Australia. Medical Services Advisory Committee. Australian Government, Department of Health and Aged Care. http://www.msac.gov.au/internet/msac/publishing.nsf/Content/1564-public Further reading; Immunoglobulin for Chronic Inflammatory Demyelinating Polyneuropathy April 2021 MSAC application no1564 Re-submission Assessment Report http://www.msac.gov.au/internet/msac/publishing.nsf/Content/2B740EDAE80B75DFCA25837E00096D86/$File/1564%20Final%20report.pdf Report is Australian and written for the medical profession. Assumes knowledge of medical terminology. Downloadable report pdf file 179 pages Data breakdown by Australian States. Patient characteristics. Diagnostic Criteria. BloodStar data. CIDP therapy trials data. IVIG. Plasma Exchange. Corticosteroids. IVIG dosage rates. Cycle length. Duration of treatment. Economic evaluation and so on. 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EDINBURGH CASTLE & THE ROYAL MILE Edinburgh is the capital of Scotland. Edinburgh Castle is a historic castle in Edinburgh, Scotland. It stands on Castle Rock. A very imposing mountain back drop to Edinburgh city. Royal Edinburgh Military Tattoo Nightly shows run during the month of August. The event is held in front of the entrance to Edinburgh Castle. There is open air grandstand seating for many thousands to view the Tattoo each evening. The Royal Mile From the Castle gates to the Palace gates the street is almost exactly a mile (1.6 km) long and runs downhill to Holyrood Palace. There is shop frontage on most of the mile. Many sell souvenirs. Whisky stores frequent the mile. The Edinburgh Festival Fringe is the world's largest arts festival; it takes place in Edinburgh daily every August along with the military tattoo. There are hundreds of street performers performing for the tourist crowds along the Royal Mile. We arrived into Edinburgh Waverley train station upon first morning light aboard the Caledonian Sleeper from London. An eight hour train trip. Sleeping quarters were a little cramped but ok. Train station buildings are constructed of stone. An old world charm suiting the style of the city. Edinburgh is a very scenic city with the large dominating and dramatic Castle overlooking the city CBD. We held pre-ordered tickets to the Edinburgh Tattoo. The Tattoo is performed nightly over August. During the day street buskers perform non stop in the Royal Mile. All on the Royal Mile are overseen by the imposing castle. Traveldriven CLICK TO ENTER EDINBURGH CASTLE https://www.google.com/maps/place/Edinburgh+Castle Caledonian Sleeper London to Edinburgh https://rail.cc/night-train/london-edinburgh-caledonian-sleeper/198 EDINBURGH CASTLE SCOTTISH PICTURE FRAME AS REAL AS IT GETS THE SCOTTISH HIGHLANDS THICK SCOTTISH ACCENT ONE O'CLOCK GUN FIRING EDINBURGH CASTLE EDINBURGH TATTOO GUN DRILL Scotland, Scotland the Brave EDINBURGH CITY STREET PERFORMER STREET PERFORMERS ROYAL MILE EDINBURGH GOOGLE MAPS PREV PAGE NEXT HOMEPAGE

SINGAPORE For us tourists Singapore was a four day stopover enroute to France from Australia. Singapore is officially known as the Republic of Singapore. Raffles Hotel is the most famous hotel in Singapore. Singapore Sling The origin of the Singapore Sling Cocktail history dates back to the 1930's. Ingredients of gin, Grand Marnier, cherry liqueur, Bénédictine, pineapple, lime, bitters and club soda. Inside Raffles Hotel patrons enjoy a sling in the Long Bar for greater than $30 US. Beer is much more reasonable priced and the peanuts are free. It's a long held tradition to grab a bag of provided unshelled peanuts, eat and throw the discarded shells on the Long Bar floor. Do this anywhere else in Singapore and expect a large fine. Feels comical among the plush décor and obviously well-heeled clientele. Gardens By The Bay This is a nature park spanning 101 hectares (250 acres) in the Central Region of Singapore. The park consists of three waterfront gardens. Supertrees are the 18 tree-like structures that dominate the Gardens' landscape with heights up to 50 metres (160 ft). The Flower Dome is the largest greenhouse in the world. Free nightly light shows. Free picnics are allowed on the green lawns. Marina Bay Sands The sprawling resort is a multi-level casino hotel topped with a boat like structure said to resemble a deck of cards. An infinity edge pool at a height of 66.5 m (218 ft) overlooks the dramatic Singapore skyline. Access to swim in the infinity pool is for hotel guests only. On this occasion we were caught out by an over flight of birds when we decided to walk the F1 street track. Much of the temporary roadside grandstand seating was under construction for the upcoming race. The birds relieving themselves on us unsuspecting tourists walking below. Soiling our shirts. Luckily our accommodation was close by to change clothes. Singapore is a safe and clean city for tourists. Although many goods can be quite pricey. Traveldriven CLICK TO ENTER RAFFLES HOTEL GA RDENS BY THE BAY MARINA BAY SANDS NIGHT SKYLINE SINGAPORE Under construction Singapore F1 Grand Prix track Marina Bay Sands Boat or Deck of Cards? FAMOUS RAFFLES HOTEL RAFFLES HOTEL & THE FAMOUS COCKTAIL DRINK RAFFLES HOTEL HAS GONE NUTS CLOUD FOREST, FLOWER DOME & SUPERTREES GARDENS BY THE BAY GARDENS BY THE BAY WATERFALL GARDENS BY THE BAY DOME STRUCTURES FOR PLANTS SINGAPORE DANCING LIGHT SHOW TRADITIONAL SINGAPORE SINGAPORE CBD MOTEL POOL FOR STEAMY CLIMATE AIRPORT LOUNGE EXPENSIVE BEER 4 X 375ML BOTTLES $70 IN AUSTRALIA PAY LESS THAN $20 FOUR 375ml BOTTLES FREE HOP ON HOP OFF SIGHTSEEING Shopping mecca Singapore Lion & Marina Bay Sands SINGAPORE LION MARINA BAY SINGAPORE GOOGLE MAPS PREV PAGE NEXT HOMEPAGE

BLARNEY CASTLE The castle is now a partial ruin with some accessible rooms and battlements. At the top of the castle lies the Stone of Eloquence, better known as the Blarney Stone . Tourists visiting Blarney Castle may hang upside-down over a sheer drop to kiss the stone, which is said to give the gift of eloquence. There are many versions of the origin of the stone, including a claim that it was the Lia Fáil — a numinous stone upon which Irish kings were crowned. Wikipedia Castle Towers & Ramparts The highest tower of Barney Castle is twenty-eight metres or ninety feet. Access to the Blarney Stone is via a tight spiral stone stairway inside one of the towers. The stairway spirals to the righthand side and has guard railing in place. The higher up the tighter the spiral. At the top exit is a predominately flat walkway leading to the Blarney Stone on the opposite side of the building. The walkway (ramparts) follows around inside the top stone outer walls. The internal structure is hollow down to ground level. All walkways have safety rails. Kiss the Barney Stone To kiss the Barney Stone one's legs are held firmly by two assistants and the person leans over backwards and down and faces upward on the parapet's edge and plants a kiss on the stone. An assistant reaches down and wipes the stone clean between kisses. People are moved along and take stone stairs to ground level. There is no public access to Blarney Castle Dungeon. A small segment can be viewed from the outside. The Castle grounds are quite interesting. With Druid Stones a Grotto etc. Traveldriven BLARNEY CASTLE BENCH DRUID STONES QUEUE FOR THE BLARNEY STONE AT THE TOP ALONG THE RAMPARTS KISS THE STONE AT THE VERY TOP THE DUNGEON DID THE BLARNEY STONE MOVE? THE BLARNEY STONE & BING CROSBY GARDEN ARCHWAY OF BLARNEY CASTLE PREV PAGE NEXT HOMEPAGE